I have had osteoarthritis and inflammatory arthritis for over a decade and was finally diagnosed with fibromyalgia about six years ago. My Rheumatologist had me go for a sleep study and I was only diagnosed with mild sleep apnea. Over the last six years I have been given scripts for several medications which have done nothing for my Fibro or arthrits pain. Last month I had an episode after having botox to treat my constant headaches that sent my body into a tailspin. My cardiologist thought I had conjestive heart failure because I had swelled up like a balloon from head to foot over night and gained over 20 pounds. We really do feel now that I had a reaction to the botox, but to make a long story short I had all the testing for the CHF and everything was fine so my cardiologist and internest decided that I needed to have a sleep study done. .............. This ended up being a joke. I don't generally sleep for more than 1-2 hours without waking up and having to turn over because I am in so much pain. The night of the sleep study I was awake every hour. I don't know how they could have gotten any results because I didn't sleep long enough at a time. Now they want me to come back in for a second study and to put a CPAP machine on me to find out if it will help my supposed very low oxygen levels.
Mommy Cat if you still look at this website I hope this confirms your feelings. The symptoms that cause a fibromyalgia diagnosis eventually cause sleep problems, not the other way around. My arthritis's, bursitis are all post traumatic from injuries I sustained through falls on ice. I can't have surgery on my bone on bone knees because I have herniated and a ruptured disc's in my neck which has caused my shoulders to be in constant pain from occipital nerve damage/inflamation in my neck and shoulders, which causes my constant headaches.because I can't use crutches or a walker for weight bearing. I also have herniated and ruptured disc's in my lumbar spine. I could go on and on, but I won't. I have been on a drug called disperamine for about 4 months and it does nothing to help me. I just wish there was something out there that would help. I am 66 years old and physically I am in worse shape then my 95 year old mother.
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