I get small bumps on my fingers & toes on and off. The bumps are about 1-2mm across and are always centred on my joints. A flareup can last from as little as a day to as much as three months. Usually, I'll have them for 1 or 2 weeks. The bumps are small and raised and occasionally have a tiny blood blister in the middle of them. However they are not fluid filled - they are more like a small mosquito bite.
Usually, they will start on my index finger and then spread to my other fingers/thumbs & toes, depending on how severe the flare up is. I have kept a diary to see if there is an environmental factor at play but I have yet to find any correlation between food/products and flare ups. The only thing I will say is that the last 2 flareups have been when I've gotten really cold, and the flare-ups are increasing in frequency.
I went to my Doctor who quite literally backed away from me like I was a leper. He took some blood and it showed I had antinuclear (?) proteins in my blood so he referred me to a rhematologist (?).
This specialist had no idea what was wrong and asked me to go look up my symptoms on the internet. He also sent me to a blood flow study where it was found my blood flow sucks - they did a test where you put your hands in a freezing bucket of water and then watch you through IR to see how quickly proper circulation returns to your hands. In a 'normal' person, this will be about 2 minutes. 10 minutes later and blood was still not flowing to my hands properly. However Raynauds was ruled out as I don't have the blue/white mottling associated with it.
The rheumatologist then put me on antihistamine which didn't work. So he then put me on steroids. These left me dizzy/fainting a lot and I ended up with horrendous chilblains (this could have been coincidental, but I've never had chilblains before or since).
In between all of this, the NHS have managed to repeatedly lose all my notes (thankfully, I have a good memory and I ask questions so every time I've been to see a doctor/specialist, I've been able to recite what the pervious person has said and what my results have been) so I don't really want to go back to my Doctor again, particularly as I'm in good health (eat well etc) and I've had these for over 15 years so it's obviously not life threatening :)
Does anyone have any ideas what I might have? I've started another flare up this morning and the frequency of the flareups is starting to grate a little!
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