Discussions By Condition: Skin conditions

I have Wells Syndrome...Or do I?

Posted In: Skin conditions 1 Replies
  • Posted By: Anonymous
  • October 20, 2014
  • 04:28 PM

I had a rash back in April 2014. Small bumps in patches. Not too itchy. Fairly certain that Baby Oil contributed to the start of it. I didn't go to a doctor until 3 weeks later. I was given Prednisone and it went away.
About 2 months later I got the same type of rash. This time I waited 3 months before seeing a doctor. My primary referred me to a dermatologist.
The dermatologist recommended Prednisone but I did not like how I felt last time so she prescribed a strong cream along with a nighttime antihistamine. Almost immediately my small bumps became welt-like. And it spread. I returned and they prescribed Prednisone along with Allegra. A biopsy was done at this time. The Prednisone did not work this time. After I was weaned off - they tried Minicycline - also did not work. The biopsy came back testing positive for Wells Syndrome - a rare skin disorder. They asked for a 2nd biopsy to check for a blistering disease - the results take approximately 2 weeks. Next I was put on Dapsone (Day 9 of taking it) and Allegra and Hydroxyzine at night. My 2nd biopsy came back negative - whew. However, I am still itchy and developing small bumps again that tend to travel. They would like for me to go to a doctor 3 hours away and they scheduled an appointment February 23. I don't think I can itch for that long!
If it is Wells than shouldn't one of these meds have worked?

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1 Replies:

  • I have had the same thing for 5 months. No one can tell me what it is. Thank you for posting
    Anonymous 1 Replies
    • November 1, 2014
    • 02:20 PM
    • 0
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