Hi to everyone, I am new and thought I would ask a question.
We have a little guy (7) that developed the symptoms of Erythema Nedosum at the beginning of this summer (2006). It started on his lower legs, progressed to his thighs and is now on his fore arms.
I have spent a good deal of time researching this condition and by all accounts he is very young to have this, he hasn't been tested for underlying issues but will be in the new year.
Even though his skinny little legs have stopped producing 'lumps' it appears that during the active stage it has literally 'eaten away' all and any fatty tissue. So he now has only bone/muscle/sinew showing on his legs, pronounced by large knee caps, and no 'fleshy' areas at all. Does anyone know if given time the flesh/fat will return to his legs? He is a mere 42 pounds at 7 years of age, and the disease has now progressed to his arms. The fear is that it will be the same bone/sinew left on his arms as well...the poor child not only has gone through a lot of physical pain..but of course the children at school are laughing at his physical appearance.
Does anyone have any experience with EN? Will the flesh and fatty cells return to his extremeties, or will this be a permanent situation?
Many thanks in advance to anyone that can share some insight.