Discussions By Condition: Skin conditions

5 year old with lifelong skin condition..no treatments helping

Posted In: Skin conditions 4 Replies
  • Posted By: stacey8281
  • February 22, 2009
  • 07:24 AM

My daughter is 5 years old and was diagnosed with eczema at 3 months. She has taken every cortisteriod approved for her age, along with some that are not. she has sores from her scalp to her ankles. she can't sleep at night due to the unrelenting itching. she is currently taking 3 tsp of hydroxizine at night to help her sleep and relieve the itching..which it does not. she wakes up every morning with her hands covered in blood due to the scratching. there seems to be nothing that can prevent her from scratching at her skin...and nothing that relieves the itching. we use all the textbook treatments...keeping the skin moisturized, cotton clothing, etc. anything that has been written on the subject has been tried. she was recently diagnosed via biopsy with "psoriasisform dermatitis". i later found out that that is just a generic term for "a skin problem we can't lable". she has seen an allergist and the tests conclude that she is allergic to nothing. she does not have asthma or any other commonly related disease. her dermatologist which range from tn to ucla have advised us not to come back because they can't help her. i was recently told by a psychologist that my daughter sees (we're even trying relaxation therapy to ease the pain) to have her seen by an immunologist and research the use of chemotherapy as a treatment. does anyone know about this? has anyone ever has results from an immunologist for dermatitis? if anyone has any answers or suggestions...please let me know...we are at our breaking point.

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  • My daughter is 5 years old and was diagnosed with eczema at 3 months. She has taken every cortisteriod approved for her age, along with some that are not. she has sores from her scalp to her ankles. she can't sleep at night due to the unrelenting itching. she is currently taking 3 tsp of hydroxizine at night to help her sleep and relieve the itching..which it does not. she wakes up every morning with her hands covered in blood due to the scratching. there seems to be nothing that can prevent her from scratching at her skin...and nothing that relieves the itching. we use all the textbook treatments...keeping the skin moisturized, cotton clothing, etc. anything that has been written on the subject has been tried. she was recently diagnosed via biopsy with "psoriasisform dermatitis". i later found out that that is just a generic term for "a skin problem we can't lable". she has seen an allergist and the tests conclude that she is allergic to nothing. she does not have asthma or any other commonly related disease. her dermatologist which range from tn to ucla have advised us not to come back because they can't help her. i was recently told by a psychologist that my daughter sees (we're even trying relaxation therapy to ease the pain) to have her seen by an immunologist and research the use of chemotherapy as a treatment. does anyone know about this? has anyone ever has results from an immunologist for dermatitis? if anyone has any answers or suggestions...please let me know...we are at our breaking point. Don't believe the allergist...I too was told I was allergic to nothing, even when I would have a severe asthma attack going within ten feet of a juniper tree. Allergy testing is notoriously inaccurate, and even blood tests have been shown to be inaccurate. I think there IS an allergic component happening here, very likely to foods and drinks that she is consuming. Please post her average daily diet. Was she breastfed or bottle fed? When did you introduce solid foods? When did you introduce cow's milk? You mentioned you have tried EVERYTHING, but have you tried alternative treatments? Have you tried herbal remedies or formulas? Is she taking probiotics? Does she have any other symptoms? How are her stools - how frequent are they and does she suffer from constipation? How is her urination? How many antibiotics has she been on in her lifetime? Best wishesDOM
    acuann 3080 Replies Flag this Response
  • thanks for the info..but she has had the condition since she was 3 months old and we have lived anywhere from rural tennessee to bakersfield ca and that's just consistent enough. never the less i will ask the doctors about that...we are willing to try anything!
    stacey8281 2 Replies Flag this Response
  • Don't believe the allergist...I too was told I was allergic to nothing, even when I would have a severe asthma attack going within ten feet of a juniper tree. Allergy testing is notoriously inaccurate, and even blood tests have been shown to be inaccurate. I think there IS an allergic component happening here, very likely to foods and drinks that she is consuming. Please post her average daily diet. Was she breastfed or bottle fed? When did you introduce solid foods? When did you introduce cow's milk? You mentioned you have tried EVERYTHING, but have you tried alternative treatments? Have you tried herbal remedies or formulas? Is she taking probiotics? Does she have any other symptoms? How are her stools - how frequent are they and does she suffer from constipation? How is her urination? How many antibiotics has she been on in her lifetime? Best wishesDOMi agree with you!! i know that there has to be something triggering this! she has blood test and, the ****k test on her back and a patch test....and the results are always negative for everything. we have tried eliminating things from her diet one at time for a few weeks just to see if we could find the trigger...but no luck so far. she has never has any kind of illness, other than the common cold. she has only taken cephalexin for the secondary infections on her skin caused from scratching. she was a formula fed baby and didn't start on solid foods until she was 6 months old, and didn't get cow's milk until a year old. she has been tested for lupus and other immune disorders..all negative. her immune system is apparently in excellent condition. her stools and everything else are all perfectly normal. as far as the alternative treatments...we haven't tried any. she is seeing a psychologist right now for relaxation techniques to help her not scratch. she is also being seen by a psychiatrist who is going to prescribe her medication to make her sleep at night because she rips at her skin while she is sleeping because of the itching. i thought about accupunture or even hypnosis but am not sure. thanks for any info!
    stacey8281 2 Replies Flag this Response
  • i agree with you!! i know that there has to be something triggering this! she has blood test and, the ****k test on her back and a patch test....and the results are always negative for everything. we have tried eliminating things from her diet one at time for a few weeks just to see if we could find the trigger...but no luck so far. she has never has any kind of illness, other than the common cold. she has only taken cephalexin for the secondary infections on her skin caused from scratching. she was a formula fed baby and didn't start on solid foods until she was 6 months old, and didn't get cow's milk until a year old. she has been tested for lupus and other immune disorders..all negative. her immune system is apparently in excellent condition. her stools and everything else are all perfectly normal. as far as the alternative treatments...we haven't tried any. she is seeing a psychologist right now for relaxation techniques to help her not scratch. she is also being seen by a psychiatrist who is going to prescribe her medication to make her sleep at night because she rips at her skin while she is sleeping because of the itching. i thought about accupunture or even hypnosis but am not sure. thanks for any info! I suggest getting her on a good quality children's chewable NONDAIRY probiotic. Even though her stools are normal, a probiotic can help reintroduce the beneficial bacteria in her intestines. this may help her eczema symptoms and certainly cannot hurt. Have you tried taking out ALL sources of dairy for at least a month and see if her symptoms improve? You need to be very diligent with this, and not give her any source of dairy/cheese/yogurt, etc. Please research the candida/eczema connection. It is possible that candida overload is causing her severe itching. Also consider parasites - do you have any animals/pets? A candida cleanse may be helpful, but you need to be careful due to her age. Threelac may help, and is more gentle than some of the candida cleanses. Google for more info. I think candida is a key issue here. Have you tried oatmeal baths? Just put a handful of dried oats in a piece of cheesecloth and put this under the running bathwater. This is VERY soothing. What lotions are you using? What laundry soap do you use and do you use fabric softeners? I recommend Herbal Aloe Force skin Gel and a good colloidal silver product to apply topically. Rescue Remedy will help her anxiety and sleep issues - this is a very safe tincture and you put two drops in a glass of water. I have used this Bach Flower remedy for years, when I was pregnant and with my kids and even my dogs. It is much safer than medication - I'd avoid a sleep med if at all possible. I would recommend finding a good pediatric naturopathic doc, or homeopathic doc to help your daughter. There are excellent homeopathic remedies you can try - hepar sulfur and sulfur and chamomile are just a few. Research this on the internet - they are cheap and very effective. I have used homeopathic remedies on my two kids since they were babies. Hope you give some of these suggestions a try.Best wishesDOM
    acuann 3080 Replies Flag this Response
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