This is my third post here and I really hope that someone can give me some advice because I’m back at square one and don’t know what to do.
For those that are interested, you can find out more by reading my other posts, "UTI's, Ovarian Cysts and L.Q.Abdominal Swelling" and "Gerd, possible IBS & female symptoms?". For everyone else’s sake, I’ll try to keep this brief.
In April 2006, during my annual Gyn exam, I complained of symptoms of a Urinary Tract Infection. Doc insisted I be tested for STD’s as the culprit, which wasn’t the problem and tests confirmed that. Five days shy of a month later I was back in the doctor’s office with the same symptoms. This time I was given a three day antibiotic and sent home. Another month later I was back in her office complaining about the lack of treatment I was receiving. Long story short, I found a new doctor and started the process all over again.
In July of 2006 I was taken into the local Urgent Care because the symptoms wouldn’t go away, plus there was the addition of several other symptoms which had started to worry me (instant bloating AS I ate, irregular bowel movements, periods etc). My urine was tested and I was sent home with a prescription for an antibiotic. Couldn’t fill the antibiotic because the pharmacy refused to fill it if it was written by that specific doctor (don’t know why) so I had to wait to get another called in. In the meantime I called a few days later to get the results of their Urinalysis and was given several different answers’ ranging from it was ok to there was something wrong. Eventually they just said they weren’t sure if it was right or not and assumed it had been contaminated somehow.
Immediately went to another doctor who finally started taking me seriously and sent me to have three ultrasounds done. The results of those indicated numerous ovarian cysts, one possibly hemorrhagic, and some fluid noted in the cul-de-sac and along side one of my ovaries. That was in mid July of 2006.
In the meantime I had developed a lump in my right breast which I also had to get an Ultrasound of, as well as a Mammogram, which led to the Fine Needle biopsy (it wasn’t cancerous and didn’t need to be removed unless I just wanted it removed).
In November of 2006 I was sent for another ultrasound and the cysts were gone, but my symptoms had continued to worsen. I had gone from 98lbs to 84lbs (now I’m only back up to 92lbs) but my clothes were getting too small because I was still getting bigger around for some reason. I had a very hard time eating because I would bloat with every bite which made me feel full all the time. Now I just have no appetite whatsoever because I either feel sick to my stomach all the time or it just hurts for no reason.
Since the beginning of 2007 I have seen numerous specialists from GI doctors to kidney doctors, as well as my primary care doctor and Ob/Gyn. I’ve had an EGD, Colonoscopy, Laparoscopy, Hysteroscopy and all sorts of tests done and their still not telling me anything useful.
EGD & Colonoscopy confirmed gastric reflux and possibly IBS, but won’t know until my GI doctors goes over what my Ob/Gyn found. The other procedures confirmed… I don’t know what. My Ob/Gyn said it’s PID, but he seems floored by the fact that I don’t have any STD’s, I know, they have insisted on testing me now three times since this started. But during my first follow-up visit he said all sorts of things that he’s trying to back peddle on now and I’m not sure why. He said it’s PID, but doesn’t know what caused it and my primary care doctor said he should be able to tell us. He also mentioned there was a test to confirm that the infection is cleared, but at a later appointment denied ever saying that. I’ve got the pictures from the procedure and there are adhesions everywhere and I mean pretty much everywhere. One tube is completely blocked off and the other is about ¾ the way. He also showed me a spot of endometriosis and some cysts, but again during the second office visit he started back peddling and denied ever saying that too. He also said something else peculiar, he said that when he asked me when my last period was I told him such and such date, but that upon examining me during the laparoscopy he could see that I had menstruated two days prior and not the two weeks or so prior that I had told him. But I know for a fact it was when I told him and not two days before… I’ve been tracking it every since this all started.
Has anyone gone through something like this because my last visit he cleared me not to come back for 6 months and I’m not feeling any better, majority of my symptoms are just as they were before the round of antibiotics and if anything I’m feeling just as bad and some days even worse than before. This has me REALLY scared and I’m not sure what to do. I keep switching doctors trying to get somewhere, but they all end up doing the same thing and I don’t understand why.
Has anyone else been given a diagnosis of PID that it wasn’t in fact PID, but something else?
Any advice would be helpful and much appreciated.