Discussions By Condition: Sexual conditions

lymphogranuloma venereum

Posted In: Sexual conditions 1 Replies
  • Posted By: Anonymous
  • August 1, 2007
  • 04:23 AM

Anyone even been diagnosed with lymphogranuloma venereum?
How did it turn out for you.
Did you suffer any other complications from this?

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1 Replies:

  • I have been diagnosed with LGV after a year and 8 mo. of living ***l! It started when I was 43 years old, heterosexual male and started dating a divorced mother of two. Her ex husband was in the marines for over twenty years and divorced due to his cheating on her. They were divorced over two years when we started dating. I was told by both of them that she had not dated anyone after her divorce. This started in November of 2005 and found out what the problem was a month ago or so. I had all the normal STD'S tested and came up negative 3 times. I went to the free clinic after spending over $3000.00 out of pocket in doctor visits. Checked with them to see if there was anything the doctors might have missed and was told no. No other std's were out there. I suffered very painful inguinal pain and almost lost my job from the fatigue. My eyesight was getting blurry and pain was shooting down my arms and legs. I developed a pain in my spine about mid way up my back. The doctors thought this was some kind of injury and did four MRI's of the groin, upper and lower back and one of my brain.(They thought I had MS but were wrong) They gave me an epidermal in my lower back to stop the pain. Then the urologist said I had a right inguinal hernia and sent me out for surgery. After the surgery I was still having a lot of pain in the groin area so he suggested doing the other side as well. I was not going for it and got a second opinion. I did not have a hernia and the second surgeon would not operate on me due to his examination. Now after the hernia surgery my right testicle is three times the size of my left and was told that was due to the lymphatic fluid was slow to return. Also all of my joints hurt and I feel like an old man now. After the six doctors all started telling me there was nothing wrong with me and this was all in my head I started reading the Internet. Found some info on LGV and demanded the serology blood test for LGV. It has never been found in Fresno,California and Quest diagnostics did not know how to do the test. They sent it off to the Nicholas institute and it came back positive for LGV. The doctor started me on three weeks of Doxycycline. After the three weeks of that the symptoms were still there so I requested Bactrim. I am in my second week of BACTRIM DS and not having much luck with it. I would really appreciate it if anyone that has had this or a doctor that has treated anyone for it give me some pointers on what to do now. I developed pain in my chest along with a rash on my chest. The good thing is my eye sight has started clearing up. Thank GOD for that. Different doctors have told me that this is bacteria, Virus or a Spirochete. Not one doctor in the Fresno area really knows, and all are backing away from me now. I have two infectious diseases doctors cancel my appointments with them a UCSF even turned me down. I think the doctors are running away from me because they know this was a huge mistake and don't want to be involved anymore. OR they don't know what to do about it. The way I found the connection was the woman I was dating kept getting a swollen labia on one side but told me it was just a varicose vain.(Wrong!) I hope the young woman that posted on her LGV findings will come back and tell us how she turned out. I would like to know if there is some hope for me. PS a CMR was turned in to the state health department but they did not even follow up on it and told me the report must be wrong. My mental state has been changed and I have no sex drive anymore. Take it serious folks.....its out there and its dangerous!!! Hope to hear back for some of you doctors and infected people to compare notes.
    Anonymous 42,789 Replies
    • September 1, 2007
    • 06:15 AM
    • 0
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