For the last year my now 2 year old has needed oxygen at night. His oxygen levels fluctuate between 80 and 90 and sometimes drop into the 70's. He has acid reflux which we've been treating for 11 months now. His pulmonologist thinks he breathes in some stomach acid/contents and that has damaged his lungs- thus causing the problem. In his first year of life he was hospitalized 5 times with pneumonia and 2 times with RSV. I'm sure the pneumonia was caused by microaspirating the acid reflux. He's been almost sick free for the last 10 months exept this oxygen problem. He's been through every test imaginable - numberous xrays, 2 cat scans, cystic fibrosis (nothing there), 3 echocardiograms (good turnout each time), ph probe tests, this list can go on. He had a sleep study in aug and had a little obstructive sleep apnea - his tonsils were 75% obstructive, so he had his tonsils and adnenoids out. Still no improvement in his low O2's at night. During the day they are not so great either (94-95). However his last cat scan suggested he had a problem with interstitial tissue in the lung so they did a lung biopsy and it didn't agree with the cat scan but possibly something called lymphatic hyperplasia. Does anyone know anyone with these problems. Is is the lymph. hyper thing, the acid reflux, the interstitial lung - I can put it all together and we can seem to find the fix. Help this tired mommy if anyone can!Reply Follow This Thread Stop Following This Thread Flag this Discussion
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