Discussions By Condition: Repiratory conditions

Pulmonary Embolism/Pregancy related/Hughes Syndrome

Posted In: Repiratory conditions 2 Replies
  • Posted By: Anonymous
  • December 6, 2006
  • 11:05 AM

Hi,
I have a 10 week old daughter and a week after she was born I was in hospital after having great difficulty to breathe. After a CT scan I was diagnosed with 2 'huge' palmonary embolisms, one on each lung. I am being treated with an anticogulant and feel better, still breathless at times. This is my 4th child and apparently it is pregnancy related, although I've never had blood clots before. I have been tested for Hughes Syndrome - Antiphospholipid syndrome or 'sticky blood syndrome' but this has come up as normal. Are there any other conditions that could have caused this? I was tested for sticky blood because I have also had 6 miscarriages and suffer from migraines which are also symptoms of Hughes Syndrome.

I am trying to research this and would appreciate any advice out there!
Thanks
Gresha, UK

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2 Replies:

  • Eight weeks after the birth of my first (and only) child last summer I woke up one morning with severe chest and shoulder pain. I could barely breathe or even move because the pain was so intense. I felt as if I had a collapsed lung. I went to the ER where I was diagnosed with pluerisy, an infection in the lining of the lungs. The pain persisted for ten weeks, and I had two more emergency room visits and something like seven or eight visits to my PCP. Each time I was diagnosed with something else. On the tenth week after the initial episode the exact same thing happened on the opposite side of my chest. I finally got in to see a pulmonologist who diagnosed me with pulmonary embolisms. Five day hospital stay and now am on anticoagulants.My OB put me on birth control pretty much immediately after the birth of my child (within four weeks). I had smoked for sixteen years before my pregnancy (1/2pack daily) but quit when I became pregnant. About the same time I started the birth control, I began smoking again. The doctors have told me the combination of the birth control, cigarettes and my age increased the risk factor for PE.
    Anonymous 42789 Replies Flag this Response
  • I have ablood clotting disorder that is genetic called hypercoagulable syndrome. It is actually 3 blood disorders so they call it syndrome. It is hereditary but usually doesn't show up until you are in the 20-50 year range. It causes miscarriages sometimes and blood clots. I had a miscarriage at age 38 and had my first known clot at 53 and the secound clot 1 year later. I am on warfarin for life now. Hope this helps. The 3 disoders are 1. homozygote factor v leiden mutation. (2) heterozygote MTHFR mutation and (3) Lupus anticoagulant
    Anonymous 42789 Replies Flag this Response
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