Discussions By Condition: Repiratory conditions

please help my baby

Posted In: Repiratory conditions 214 Replies
  • Posted By: gemma_frost161
  • May 27, 2008
  • 04:03 PM

hi,im new here and need help,it all started when i was 15weeks pregnant,i had a spina bifida test that come back really high,so went hospital for scan and they said my baby dint have it but had to be monitiored throughout the rest of pregnany (lots of scans)throughout the weeks i was told there was too much amnotic fluid round the baby,then it went,then my afp was 134 which is high and they dint know why,so i was monitored for that,then my bump was smaller than it should be,then when i was about 38weeks i was told my baby head and legs stopped growing and they wernt going to do anything about it,they never told me what was causing it and why she stopped growing in her legs and head,i went to midwife on 40week check,she said my bump should be between 38 and 42 cms, my bump was 32cm and 2weeks before my bump was 35cm so it had shrunk for some reason,she made appointment at hospital for me but in the middle of night i went in labour, her heart rate plummeted to just 30 when it should of been 100-110 so nearly ended up emergency c section but managed to get her out in time, she weighed 6lb 3oz and no tests was done on her which i thought they should have cuz of what happened in my pregnancy, she was just a few weeks old when she woulnt drink her milk,it took us litterally 3hours to give her 3oz bottle,so changed her milk and she was ok for couple of days then she wernt drinking milk again so put her back on the milk we started her on and she was ok,when she was 5 and half months i noticed she is not breathing properly so took her doctors and said she was borderline asthmatic,had to take her again a few days later and they said her chest and lungs was clear but told me to give her inhaler. since then her breathing has got worse i thought she was gonna stop breathing one afternoon so went doctors and she said her lungs was clear,i cant understand why she has trouble breathing yet the doc says she is clear,she has started to have, what i think looks like little muscle spasms they only last about a sec and its all her body apart from her head.they told me she dint have asthma but to still give her inhaler to see if it helps her breathing,
since i mentioned the spasms the doc said she is refering my baby to the hospital,she thinks my baby might be developing epilepsy but im not sure.
i really need peoples advice what could be wrong with my baby? please help,i would be grateful and appreciate it
thankyou for taking the time in reading this

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  • she has also got a cough that hasnt gone away,she has had it about 2 months now
    gemma_frost161 99 Replies Flag this Response
  • What You Need to Know About PolyhydramniosPolyhydramnios (too much amniotic fluid) occurs in about 2 out of 100 of pregnancies. Most cases are mild and result from a slow buildup of excess fluid in the second half of pregnancy. But in a few cases, fluid builds up as early as the 16th week of pregnancy. This usually leads to very early delivery. Polyhydramnios is diagnosed with ultrasound. Medical experts do not fully understand what causes this condition. In 2 out 3 cases, the cause is not known. Here are two of the best-known causes:Birth defects in the baby that affect the ability to swallow. Normally, when the fetus swallows, the level of amniotic fluid goes down a bit. This helps to balance out the increase in fluid caused by fetal urination.Heart defects in the babyHas she had any actual tests such as ct scan or x ray of her lungs, or did the doctor just listen to them. What is your and her father's family history like? Has anyone lost an infant? Does she look like a "normal baby". Keep posting new symptoms and checking back, people often seem to come up with good suggestions after people have given up on this site.
    qwertyuiop123 453 Replies Flag this Response
  • hi,thankyou so much for message,she has never had a ct scan or xray,the doctor just listened to her recently and said her lungs seemed clear. my mum had a child before i was born this was with her first husband and it was a boy,he was born with a hole in his tube i think medics call it toff for short,they operated and closed it but when they gave him food again it reopened and went in lungs and he got pnemonia and died,he was 7months old and never left hospital,this was prob around 30years ago now.my grandad(on dad side) had a problem wih his heart think it was a leaking valve,he passed away due to heart attack nearly 30 years ago.the midwife knew about my half brother and she told me they might put a tube up her nose that goes in her stomach to make sure no holes,but they never did.and alot of cancer in my and partners familyand couple cases of diabetes
    gemma_frost161 99 Replies Flag this Response
  • she does look normal,i cant see any sort of defect on her,alot of cancer in both familys,a couple cases of diabetes on my side of family,my grandad (on my dad side) had a leaking heart valve and had a heart attack from it and passed away bout 30 years ago he was diagnosed with that when he was about 8,but his mum dint do anything about it,think she was too scared as medicine today is compleatley different to back then. my half brother had hole in tube (they call it toff for short) and he was born with it,they closed it but it reopened and caused pnemonia and he passed away,he was 7months old and never left hospital this happened roughly 30 years ago (before i was born) she never had a ct scan or xray,doctor said she listened to her the other day but her lungs was clear, the midwife told me (before i had her)that the hospital might put a tube up her nose that goes in her stomach to see if she had any hole but they never did.thankyou so much for your message
    gemma_frost161 99 Replies Flag this Response
  • Your welcome. It would probably be a good idea to get her heart checked, better safe than sorry, especially since their is family history of heart problems. Good luck.
    qwertyuiop123 453 Replies Flag this Response
  • i just remembered that my auntie (dad sister) has been having problems with her heart,she is having some more tests done at the hospital,i think she said her heart is her own pacemaker something along those lines,cant remember her actual words,there is also high blood pressure in the family on my dads side but my blood pressure has been fine,should i still get her heart checked?
    gemma_frost161 99 Replies Flag this Response
  • I'm not a doctor, so i don't know, but maybe you should call the pediatrician and ask to set up an appointment explain that you have a family history of heart problems, the afp was high, and now their seem to be other problems such as feeding problems and breathing problems.. I'm not sure whether she needs her heart or lungs checked, it seems like her lungs are the main problem right now. If your doctor won't help you, get a second opinion. She needs her brain checked out because of the possibilty of epilepsy, and with the cough and breathing problems she should probably have her lungs checked. The more tests are run, the closer you get to a diagnosis. I would start with the brain, and ask the pediatrician where to go from their. Meanwhile, keep posting updates, and i will continue to research, and other people will continue to give you advice. Does it ever seem like her heart is beating abnormally?Does her heart beat faster/slower the times you thought she might stop breathing?Is she still having feeding problems?Does she seem to be developing normally?Is she reaching her developmental milestones?
    qwertyuiop123 453 Replies Flag this Response
  • hi,to be honest i never thought of checking to see if her heart beat gets faster or slower,but i will start doing it,im still having problems feeding her,i manage to give her the milk but it is a struggle,she is 6months and she can hold her head up,she can sit up on your knee most of the time but when we put her on the floor to see if she can do it on her own she lasts a couple of secs then she falls back in our hands,but she is rolling onto her front and kicks her legs for abiti was told that i should expect the referal letter for hospital within the next 2weeks,i will keep on posting if anything else crops up before hospital and will post what the hospital has said and what they will do
    gemma_frost161 99 Replies Flag this Response
  • had a phone call from the hospital today,my baby has got an appointment at the hospital on 7th june,wont know anything until then unless something else crops up on my baby,will keep posting
    gemma_frost161 99 Replies Flag this Response
  • something else did crop up,i noticed grey patches on my baby head,at first i thought it was from her cot as its grey what she lies on and i thought it went on her when she sweats,but i gave her a bath and washed her hair and noticed they was still there the same size so i know it wernt her cot,i took her doctors today and the doc dint no what it was and why she had it,i explained she has hospital on sat so she said just tell them as they might know,i tried to look it up on google but it just came up with cockatiels,does any one know why my baby has these grey patches and what they might be????
    gemma_frost161 99 Replies Flag this Response
  • It seems that turners syndrome could cause an elevated afp. Just a thought i don't believe it could cause the breathing problems.. idk it might be worth looking into. I didn't notice you had posted again until I posted this message.. I'll see if i can find anything
    qwertyuiop123 453 Replies Flag this Response
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  • It seems that turners syndrome could cause an elevated afp. Just a thought i don't believe it could cause the breathing problems.. idk it might be worth looking into. I didn't notice you had posted again until I posted this message.. I'll see if i can find anything I found something about if you don't wash your babies head hard enough, and something about ringworm ew :( lol A Brownish-gray Scale on the Heads of BabiesA brownish-gray scale that develops on the heads of babies whose mothers are afraid they will hurt them by a too vigorous use of the washcloth. The disease is due to lack of cleanliness. If baby's head is kept clean from birth, the skin secretions will not dry and form into an unsightly scale on the head.TreatmentWhen the dry scale has formed white Vaseline be used, after the scalp has been thoroughly washed, using any mild soap and soft water. For every use, from birth to deaths I know of no better soap than Ivory. Most toilet soaps are irritating and have little to recommend them except smell; and there are odors that make children irritable. Irritation or overstimulation of the olfactory (smell) nerves produces enervation--the first step on the way to developing illhealth.Keep baby clean and free from all odors, agreeable and disagreeable. Perfume often covers an odor of warning, and too often camouflages the "great unwashed."Keep the baby clean inside and out by watching the bowel movements. When curds appear in the bowel movement, reduce the amount of milk until digestion is perfect. A disagreeable odor from the bowel movements means too much food; cut it down. Keep baby free from signs of overfeeding, and then you can say to calamity-mongers and peddlers of cod-liver oil: "My baby will not develop any disease no, not rickets."Rickets come from feeding beyond the digestive power, and curds in the stools, bad odors, and scales on the scalp are warnings. Tinea capitis. One or more lesions appear on the scalp, with or without inflammation. Baldness (alopecia) typically occurs. This is usually reversible and may occur in patches or affect the entire scalp. The longer the infection persists, the more likely the hair loss will be permanent. Swollen, raw and pus-filled lesions (kerions) may develop. The forms of tinea capitis have specific signs and symptoms and include:Black dot type. Begins as a small patch that slowly enlarges. There is no itching, but there is redness. Hairs break off flush with the scalp and particles accumulate in the follicle openings, appearing as black dots. If left untreated, scars may form.Gray patch type. Begins as a small patch that spreads for a while then stops spreading and persists. Redness and scaling are present. Hairs break off just above the scalp level and have a frosted appearance.Anti-fungal medications, taken by mouth, are used to treat the infection. Keep the area clean. A medicated shampoo, such as one containing selenium sulfide, may reduce the spread of infection. Other family members and pets should be examined and treated, if necessary.Outlook (Prognosis) Return to top Tinea capitis may be extremely persistent, may resolve spontaneously at puberty, and may recur.
    qwertyuiop123 453 Replies Flag this Response
  • hi thankyou so much for message,the grey patches look abit like bruises,what i mean by that is that there not lumps and not scaley,i touched them to see if they hurt my baby but they dont hurt her which is good,going to take her to hospital for her appointment in the morning and i will mention what you told me it could be a sign of and see what they say, i will post tomorrow to let you know what happened at hospitalmany thanx again
    gemma_frost161 99 Replies Flag this Response
  • i took her hospital and they are going to give her x rays and ct scan to check her brain,they think its early signs of epilepsy and she has some signs of craniosynostosis,i think thats why there giving her xray to see if she has it,she lost abit of hair aswell,so when she has these tests and if they show that she dont have them then he said he is going to do further tests,we have to wait 8 weeks for the xray and ct scan unless she gets worser then they will get her in quicker,i will keep posting to let u all know what has happened,the results,if anything else crops up etc....
    gemma_frost161 99 Replies Flag this Response
  • That would explain the elevated afp and polyhydramnios. I found a support page for families http://www.craniokids.org, and read through some stories. They were very inspiring and the babies were sooo cute. I am sorry to hear that this could be something your daughter is going through, however I am glad it sounds like those episodes were seizures, not something wrong with her lungs. Hang in there and try not to stress out too much over the next 8 weeks.
    qwertyuiop123 453 Replies Flag this Response
  • hi i looked at the site you told me about and your right,the kids are really cute,there was one boy on the site and you could tell straight the way he had cranio bless him,my baby is abit like another baby girl on the site,you cant tell the baby on the site has cranio untill you look closer,when i look at my baby you can see one of her ears is higher than the other ear,and if you look closely you can see one eye is bigger than the other and one of her cheeks is bigger than the other, as far as i know,babies are born with 2 soft spots on the head,one on top near forehead and one at the back of head near neck but abit higher up,when my baby was born she had just 1 massive soft spot at top of head,started where it normally does (near forehead abit more up) and carries on to nearly all of the top of head,is that anything to do with cranio or anything else? or is it just that some babies have 1 massive soft spot and its nothing to worry about?
    gemma_frost161 99 Replies Flag this Response
  • babies should have two soft spots When babies are born, their skull bones have not yet fused. This incomplete closure benefits newborns by allowing them to squeeze more easily through the birth canal, and it later accommodates brain growth. At birth, there are usually two "soft spots" present: the "anterior fontanelle," located toward the front of the head, and the "posterior fontanelle," located toward the back of the head. The posterior fontanelle measures between 1 and 2 centimeters at birth and normally closes during the first four months of life. The anterior fontanelle is larger, measuring between 4 and 6 centimeters at birth. Although it is normal for it to close as early as the age of four months or as late as 26 months, 90% close between the ages of seven and 19 months.These measurements, as well as a child's head circumference, should be followed closely during the first few years of life. Poor head growth and subsequent early closure of the soft spots are worrisome, as they may indicate abnormal brain development. But even if the soft spot is closing "early," as long as the child's head is continuing to grow and he or she is meeting developmental milestones, the pediatrician will only need to follow the child?s progress with regular checkups.Poor head growth is different from craniosynostosis, a rare condition caused by the premature closure of one or more of the spaces between the skull bones. These sites at which the skull bones fuse are referred to as "cranial sutures." If a cranial suture closes too early, brain growth is restricted in that area. Consequently, the remaining sutures that are open compensate for the early closure, allowing the brain to develop normally, but the result is a misshapen head. Isolated closure of a single suture usually results only in cosmetic changes. However, early fusion of several sutures may cause significant deformities of the face and skull, impair brain growth, lead to increased pressure within the skull, and in severe cases, result in death. Since brain growth occurs quickly during the first year of life, craniosynostosis should be diagnosed early and children should be promptly referred to a neurosurgeon for treatment. The initial surgery is usually performed between the ages of two and nine months to achieve the best cosmetic result and to ensure proper brain growth. The extent and number of surgeries depend on the severity of the malformation. Besides unusual head shape, signs of craniosynostosis include:Abnormal feeling "soft spot" (fontanel) on your baby's skullEarly disappearance of the fontanelSlow or no growth of head as baby growsDevelopment of a raised, hard ridge along affected suturesIncreased intracranial pressureThe signs of craniosynostosis may not be noticeable at birth, but they will become apparent with the first few months of your baby's life.On the other hand, a misshapen head doesn't always indicate craniosynostosis. For example, if the back of your baby's head appears flattened, it could be the result of your baby's sleeping on his or her back. The "Back to Sleep" campaign, co-sponsored by the National Institute of Child Health & Human Development, encourages parents to put healthy babies to sleep on their backs to reduce the risk of sudden infant death syndrome (SIDS). The campaign has resulted in more cases of misshapen heads. In this case, the flattening is a result of positional molding, not synostosis.http://d.yimg.com/origin1.lifestyles.yahoo.com/ls/he/mayoclinic//images/image_popup/r7_cranialsutures.jpg Joints called cranial sutures, made of strong, fibrous tissue, hold the bones of your baby's skull together until the bones fuse, normally around age 2. Until then, the sutures intersect at the fontanels, the soft spots on your baby's head. The largest of the four fontanels is at the front of the skull (anterior), the next largest is at the back (posterior). The sides of the skull each have a tiny fontanel. Does it sound like that one soft spot was as big as the two soft spots babies usually have, or does it sound like she only had one of the two soft spots?
    qwertyuiop123 453 Replies Flag this Response
  • she had 2 soft spots,the one at the back of head was ok,but the one on the front was massive,it was really big,wernt sure if it was normal for babies with soft spots like that or if it was something else
    gemma_frost161 99 Replies Flag this Response
  • What is the fontanel (soft spot)? At about what age does it disappear? http://en.wikibooks.org/skins-1.5/common/images/magnify-clip.pnghttp://upload.wikimedia.org/wikipedia/commons/thumb/b/b3/Gray197.png/200px-Gray197.pngThe skull at birth, showing the front (anterior) and rear (posterior) fontanels.The skull of a newborn consists of five main bones: two bones in the front, two bones on the side (one one each side), and one bone at the back of the head. These are joined by fibrous joints, which allow movement that facilitates childbirth and brain growth.At birth, the skull features a small fontanel at the back of the head, an open area covered by a tough membrane, where the two bones at the sides of the head adjoin the bone at the back of the head. This fontanelle usually closes during the first several months of an infant's life.There is also a much larger, diamond-shaped fontanel where the two frontal and two side bones come together. This fontanel remains open until the child is about two years of age. This fontenel is found at the very top of the baby's head.The fontanel at the top of the head is useful clinically. A sunken fontanel indicates dehydration, whereas a very tense or bulging fontanel indicates raised pressure inside the skull (both conditions require medical attention).Parents may worry that their infant may be more prone to injury at the fontanel. In fact, although they may colloquially be called "soft-spots", the membrane covering the fontanelles is extremely tough and difficult to penetrate. I'm not sure if this will show the picture i intended for my last post to have a picture but it didn't so if this one doesn't either heres the link http://upload.wikimedia.org/wikipedia/commons/thumb/b/b3/Gray197.png/200px-Gray197.png every other picture i see about soft spots shows they stop where this picture shows they just get narrower, they don't actually end. Also, it shows the frontal soft spot as much, much bigger than the back soft spot. Does this soft spot look like its about the same size and location of your daughter's, or was hers even bigger than this?
    qwertyuiop123 453 Replies Flag this Response
  • hi just had a look at the picture,do you mean the diamond shape at the top of head?if you did then i would say my daughter soft spot was bigger than that when she was born.ill ask my partner to look at link in the morning and he will tell me excactly how much bigger my daughters was as he first noticed it and so did the midwife who delivered her,she never mentioned anything else so i presumed some babies was born with big soft spots and thought it was normal.i will then post to let you knowmany thanx for your message
    gemma_frost161 99 Replies Flag this Response
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