I was diagnosed with a lung avm 6 months ago and my Doctor has yet to send me to a lung specialist it is a small one but from what i have read small ones have a better chance of a bleed! My doctor is not real familiar with these things.. HOW concerned should I be? from what i have read most AVMs occur in the brain or spinal cord, that a lung AVM is rare and usually caused from a genetic disorder called HHT but she hasn't done any testing on me for these conditions that can cause a lung AVM. The only thing she has done is wait 6 months and made me have another CT scan. I cant fine hardly any information for a Lung AVM most all information is about Brain AVMs.. so if anyone has any information or advice for me please,please contact me!!! these things can be dangerous from what I have read they refer to it as a ticking time bomb.......email me at perswinn@yahooReply Follow This Thread Stop Following This Thread Flag this Discussion
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