I apologize in advance if this is lengthy.
We adopted our 2yr old son recently and have had him since he was six months old. He was born exposed to cocaine and spent the first six months of his life on phenobarbital to ween him from the drugs. He's delayed upwards to a year in speech and motor skills but has mad significant progress.
Since he's been in our care he sleeps at most 4 hours a night. He'll go out like a champ and in a matter of hours will be up again rocking in his crib. No amount of soothing will change this. If we bring him into our bed he'll continue to do the same thing.
After trying many avenues a neurologist prescribed clonidine to help him sleep. The first week was like a miracle, he slept through the night, he was a different child and for the first time in two years my wife and I got some rest. That was short lived, after a week he was back to his 'normal' behavior.
The neurologist ordered a sleep studay and after months of waiting I took him in Monday night. They wired him up and after an hour he fell asleep. I snuck out of the room and the tech said somethings really wrong and we need to get him to the ER.
His O2 level was consistently at 81%. He wasn't sick, no history of asthma etc etc. We bring him down to the ER and same thing, O2 at 86%, they immediately put him on O2 and it jumps to 94%. He's also been getting breathing treatments every 4 hours.
The problem is that NO ONE can explain why this is happening. At first they say it's asthma, now it's an infection however they have not done any blood work, no cultures so we don't know how they're coming up with this diagnosis. When they lower the amount of O2 his O2 level goes down. He can't leave the hospital until he can maintain a 92+ O2 percentage while breathing room air.
The one noticeable thing is that since he's been on O2 he's been sleeping like a champ. He's been sleeping soundly and like a rock. It's amazing.
We're beginning to think that the O2 levels were low from the very beginning and are the result of his sleeping issues.
Has anyone seen this? Any input would be greatly appreciated!
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