Discussions By Condition: Repiratory conditions

Granuloma / Fibromyalgia Symptoms

Posted In: Repiratory conditions 9 Replies
  • Posted By: Anonymous
  • June 18, 2007
  • 04:20 AM

Hi there
I am currently suffering with a condition which hasn't been diagnosed professionally, but seems to be M.E. or Fibromyalgia or something similar. First clear symptoms (joint, tendon and muscle pain and stiffness, fatigue as well as unusually high infection rate to name a few) occured just after a routine x-ray showed a lung granuloma. The reason for the lung granuloma was never found, all the extensive diagnostic procedures rendered conflicting or inconclusive results. So I never treated it with antibiotics or anything else. One and a half years after the granuloma was found, and just after giving birth to my first child, the lung lesion had disappeared by itself, only leaving a tiny unspecific looking fibrotic scar. While my lungs are clear now, I have all these other symptoms. Could there be a connection (as in one condition which might have caused all of this including the granuloma) or is it maybe a matter of having strained my body too much and simply being fatigued now? My standard lab results are perfectly normal, but maybe more specific tests are needed (which ones?). Thanks for any advise.

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9 Replies:

  • Have you had a blood test for C Reatine Protein and Sed Rate...the CRP will let you know if you have inflammation and need more investigating??
    Wobbly 3 Replies
    • October 28, 2007
    • 06:43 AM
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  • Last week I had a blood check. TSH was 2.4. Which is according to new standards maybe a little high (hypothyroid?). T3 in low normal range. T4 middle normal range. All inflammation markers are EXTREMELY LOW. For example: C-reactive protein <0.1. ESR 2.
    Anonymous 42789 Replies
    • October 28, 2007
    • 11:01 AM
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  • You are in the same boat as alot of people (including myself). You have general symptoms and no bloodwork to back you up so far. I would ask for them to run these tests: ANAB12 Anti TGAnti TPOTSHT3T4FerritinPotassiumCalciumWBCCCortisolEstrogen Your TSH is in the upper normal range. I think you should keep an eye on your T4. If it comes back in the lower normal range you could be looking at hypothyroidism. B12 and Ferritin can also be low with thyroid problems. The Anti TPO and TG are tests that will tell you if you have an autoimmue variant of thyroidproblems. ANA is elevated in alot of autoimmune illnesses and your general symptoms are all seen in these. Potassium can cause muscle pain and should also be checked out. A low count is also seen in alot of different illnesses. Elevated calcium can cause an elevated PTH and is a sign of hyperparathyroidism (not to be confused with hyper/hypo thyroidism). All of your symptoms are found in hyperparathyroidism. The wbcc is to see if you have any infections (it will then be elevated). A low value is seen in alot of autoimmune illnesses such as Lupus. Cortisol and Estrogen are both hormones and can also cause some of your symptoms tho you would need more testing to find out the cause. Hope this helps Kiera
    Anonymous 42789 Replies
    • October 28, 2007
    • 08:01 PM
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  • Hi KieraThanks for the reply.I have had all the anti-body checks such as ANA and anti-thyroid etc., all negative (so far). White cells usually low normal.Potassium and calcium normal.All other tests you describe I am unable to do in the country where I live right now, but I will go home for a visit soon and will have all necessary diagnostics done. Thanks for the advise. :-) I will keep you posted.
    Anonymous 42789 Replies
    • October 28, 2007
    • 11:49 PM
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  • Hello!I was hospitalized as a child w/granulomas and still at 54yo have healed granulomas on xrays. They are & have always (for the most part) been asymtomatic. We grew up on a farm with chickens. Granulomas generally arise w/the exposure to poultry or some birds. hope this helped:)
    Anonymous 42789 Replies
    • November 27, 2007
    • 04:35 AM
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  • Hi, I just read your post a second time, and it occured to me that I didn't even mention Rheumatoid Arthritis. This can cause nodules in the lungs, and on the skin. It can also cause the joint, tendon and muscle pain and fatigue. You can be seronegative meaning that you will test negative for IGA-RF. Just incase... Kiera
    Anonymous 42789 Replies
    • November 27, 2007
    • 07:31 AM
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  • Have you looked at sarcoidosis of the lung? It will always show on your lung xrays as either active or scarring. It can also cause lumps, "bumps," or leisons anywhere(arms, legs, abdomen, etc.). hope this helped a little Deb
    Anonymous 42789 Replies
    • November 27, 2007
    • 04:10 PM
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  • My wife and I drove a 1000 miles from Tampa to Pocomoke maryland to see a doctor for the same symptoms. This doctor is a leading biotoxin researcher and practicing MD. We are now improving with his treatment with Cholestramine 4grams 4 x day. My entire family was unknowningly exposed to toxic producing mold for approx 8 years. He explained to us that the biotoxins in our system was the culpret and he tested both of us with a visual contrast test and we were both positive. Well it's working wonderfully.Here's a link to one of his videos.http://www.youtube.com/watch?v=dl1cZin9CcEWhat i would suggest is to have your precribe this resin (CSM) instead of traveling 1000 miles even though it was worth the drive and the $6000 price tag. He is NOT a PHARM DOCTOR or a qauck he has worked with the CDC.Hope you get better and you will,Rick D
    Anonymous 42789 Replies
    • January 29, 2009
    • 01:39 PM
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  • My wife and I drove a 1000 miles from Tampa to Pocomoke maryland to see a doctor for the same symptoms. This doctor is a leading biotoxin researcher and practicing MD. We are now improving with his treatment with Cholestramine 4grams 4 x day. My entire family was unknowningly exposed to toxic producing mold for approx 8 years. He explained to us that the biotoxins in our system was the culpret and he tested both of us with a visual contrast test and we were both positive. Well it's working wonderfully.Here's a link to one of his videos. http://www.youtube.com/watch?v=dl1cZin9CcE What i would suggest is to have your precribe this resin (CSM) instead of traveling 1000 miles even though it was worth the drive and the $6000 price tag. He is NOT a PHARM DOCTOR or a qauck he has worked with the CDC.Hope you get better and you will,Rick D Rick, Thank you for your posting. I feel like timing is everything and I am grateful I saw your note today. I live in Washington state and have had a year long battle with medical testing and frustrating symptoms. Was wondering if you are able to comment on the facility, the physicians name or further explain the exact study to ask for re: the molds and biotoxin testing? I would hate to spend more of my families money to travel that far, but am struggling enough that it might be worth the effort, time and money. I have felt all along that my symptoms may be due to an exposure(s) from our house fire and "clean up" we had in November 2008. I was exposed to the smoke (2 vehicles burning in our garage - terrible electric, metal, rubber burning odors/smoke, etc) and then also found mold in 3 places in the house during tear out work. Thanks for your time & especially your previous posting. So glad you are both recovering and feeling better.
    DaisyWA 1 Replies
    • February 15, 2010
    • 09:56 PM
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