Is there anyone out there who has been diagnosed with this condition I would like to hear from you. My 20 month old daughter was diagnosed with it before she was born and now it has come to a point where we have to make a decision to operate or not. the statistics show that 1 in 20,0000 babies are diagnosed with this condition. I would appreciate any information. I have googled it and got some information although helpful, it just doesn't seem to make me feel any better.Reply Follow This Thread Stop Following This Thread Flag this Discussion
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