My son began breathing very rapidly at the age of 3 months (70-80 breaths at all times). He had a pulmonary function test that concerned his pulmonologist. Since then he has had a lung biopsy (fine), swallow tests (fine), every blood test they can think of (fine), but his oxygen levels are still lower 90's when he is awake. After many, many stays in the hospital and no diagnosis, he finally is not breathing as rapidly or with the effort he once did. At his check-up today, his oxygen levels are still too low according to the Dr. and she wants a sleep study performed. I feel that we are just running in circles and there is never going to be a real diagnosis. Yes, we know he has low levels, but there's never a reason. I have his function test results, but do not know how to interpret them. At the time, they were shocked at how bad they were.
I'm hoping that there is a simple reason to his difficulties, but it's just simply being overlooked. I hope that someone reading this might be able to help.
He was diagnosed as a diabetic at one time, but the blood sugar levels were normal after that one trip to the ER. (blood sugar was read at 300)
He ws diagnosed as aspirating at one time, although swallow tests were good, and Dr. wanted a permanent feeding tube put in. He has a temporary one for a few days during one hospital stay.
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