Discussions By Condition: Rare Disases

vogt koyanagi harada syndrome

Posted In: Rare Disases 6 Replies
  • Posted By: Anonymous
  • August 28, 2006
  • 05:40 AM

hi does anyone know what i am talking about,vogt koyanagi harada syndrome,has anyone had it or got it,please looking for answers for my 16yr old son

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6 Replies:

  • I was diagnosed with Harada's in July 2006...still don't know as much as I would like to know about symptoms etc. Currently have optic neuritis in both eyes and have been on prednisone for + 3 months...yuck!lp
    Anonymous 42789 Replies
    • October 22, 2006
    • 04:24 PM
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  • Try these websites:www.orpha.netwww.genetests.org
    Anonymous 42789 Replies
    • October 23, 2006
    • 02:21 PM
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  • I was diagnosed with Harada's in July 2006...still don't know as much as I would like to know about symptoms etc. Currently have optic neuritis in both eyes and have been on prednisone for + 3 months...yuck! lp I know this was a post from forever ago, but I would love to know more about your symptoms. I am currently in the works of being ruled out for a few conditions, that being one of them.
    sarahl1976 19 Replies
    • August 24, 2007
    • 08:50 PM
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  • I know this was a post from forever ago, but I would love to know more about your symptoms. I am currently in the works of being ruled out for a few conditions, that being one of them.Hi Sarah,Let me know if you still want to talk more about my symptoms. My Doctors are still calling it VKH but I am not convinced. :confused:
    Anonymous 42789 Replies
    • December 30, 2007
    • 03:15 AM
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  • Hi Sarah, Let me know if you still want to talk more about my symptoms. My Doctors are still calling it VKH but I am not convinced. :confused: Yes, I'd love to. I've been told I possibly have that because I have a few weird skin conditions and optic neuritis starting last year. OF course, I've also been told I have a variety of other ailments/diseases. How are you? Are you still on steroids?
    sarahl1976 19 Replies
    • December 30, 2007
    • 10:08 PM
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  • Yes, I'd love to. I've been told I possibly have that because I have a few weird skin conditions and optic neuritis starting last year. OF course, I've also been told I have a variety of other ailments/diseases. How are you? Are you still on steroids?Hello again,Wow, your story sounds much like mine. I was also tested for several diseases...we should talk. Do you have messenger? I can be reached at pinehouse22@hotmail.com I am doing much better now but did suffer a very rough patch for one year that kept me from work and life...no more steroids for the moment. :rolleyes:
    Anonymous 42789 Replies
    • December 30, 2007
    • 10:34 PM
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