Discussions By Condition: Rare Disases

Velo Cardio facial syndrome

Posted In: Rare Disases 1 Replies
  • Posted By: Anonymous
  • August 23, 2006
  • 03:14 PM

Hi I have a chromosome deletion its 22cq11. :o I was born with a missing chromosome. Does any one have this same deletion? :eek: My family says that I am not alone with this syndrome?:confused: If you're like me with this deletion dont be shy reply back I'd love to hear from you.

your sister in *****t ****s:)

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1 Replies:

  • my 16 year old daughter has this syndrome. also, there is a listserve where there are many people who have kids with the syndrome, as well as some older people that have it. here is the link...vcfsfamilysupport · VCFSamily Support - A Place to Chat about VCFS/DiGeorge Syndrome https://login.yahoo.com/config/login_verify2?.intl=us&.src=ygrp&.done=http%3a//groups.yahoo.com%2Fgroup%2Fvcfsfamilysupport%2Fmembers sign up to join, then search for vcfsfamilysupport. good luck!
    esamphowe 1 Replies
    • February 3, 2007
    • 04:12 AM
    • 0
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