Discussions By Condition: Rare Disases

Vascular Ehlers Danlos Syndrome

Posted In: Rare Disases 1 Replies
  • Posted By: CrystalR
  • July 11, 2007
  • 08:57 PM

That's it - go ahead and talk about it. Do you have it, know someone who has it? Is it in your family? What have you experienced? How have you prevailed? How do you find doctors?
Just curious. Thanks.

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  • hey i have ehlers danlos type 4 i didnt no until a few months ago im 18 iv have a bowel rupture and a caroid cavernous fistula cause for no reason i dislocate my hips knees shoulders wrists i bruise easy i can touch my thumb to my forearm and put my legs over my head its really affected me in a huge way i dnt no how to deal with wat i have its changed my whole world but i want people who r going threw wat i have it isn't that big a thing it jsut means to be more careful and any weird unusal pains get it check straight away i was walking around for 2 weeks with a caroid cavernous fistula which was 2 days away from killing me wear a medical alert bracelet and dont do any drugs that cause ur blood pressure to go really high it can rupture an artery.. thanks
    Anonymous 42789 Replies
    • January 8, 2010
    • 11:15 AM
    • 0
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