Discussions By Condition: Rare Disases

Rare Disease Here!!! What is it?

Posted In: Rare Disases 1 Replies
  • Posted By: trackhead26
  • September 12, 2007
  • 07:26 PM

When you first hear the symptoms you will start to think its Herpes but as I continue you will see why it is unlikely. I'll start with the symptoms: Sores in various places, the ones on the penis start as what looks like acne, a group of about 6 bumps filled with a watery liquid. When they pop they turn into an ulceration which spreads over the head of the penis and even along the base sometimes. Ulcerations beging to appear inside my mouth, they do not start as blisters and look like canker sores. These sores affect the inside lining of the cheeks, and even my throat and tongue. They move on to my lips and at the worse have completely removed all the skin from my top and bottom lip until eventually crust over. I also get anal sores at the same time and blisters with a dark in the center appear anywhere on my body, on my hands, my arms my feet even on my chest and one time right in the corner of my eye. A couple of doctors have thought that it could be Bechet's Disease but there is no straight out test for that. The first time it happened about 2 years ago, I was first given acyclovir which did nothing and then I was given valtrax and it still continued to get worse. Finally I was admitted into the hospital s I was unable to eat or drink due to the pain from all the ulcerations in my mouth along with no skin being on my lips. They gave me a saline solution and antibiotics for 3 days until my lips started to crust over and I was able to eat soft foods again. They were unable to tell me what caused it. The blisters on my skin gradually skrink down and disappear leaving a dark brown scar. My lips eventually regrow skin as well as my penis which loses the majority of its skin on the head. There is no pain from urinating except that caused by the urine touching the open skin on the outside. Pus does seem to come out of the open wounds. Any insight would be nice, I would like to know what this thing is. I'm 27 years old and african american, born in NC and raised in NY. I've never been out of the country. I'm married and whatever it is it isn't contagious as my wife has never been affected by it.

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  • When you first hear the symptoms you will start to think its Herpes but as I continue you will see why it is unlikely. I'll start with the symptoms: Sores in various places, the ones on the penis start as what looks like acne, a group of about 6 bumps filled with a watery liquid. When they pop they turn into an ulceration which spreads over the head of the penis and even along the base sometimes. Ulcerations beging to appear inside my mouth, they do not start as blisters and look like canker sores. These sores affect the inside lining of the cheeks, and even my throat and tongue. They move on to my lips and at the worse have completely removed all the skin from my top and bottom lip until eventually crust over. I also get anal sores at the same time and blisters with a dark in the center appear anywhere on my body, on my hands, my arms my feet even on my chest and one time right in the corner of my eye. A couple of doctors have thought that it could be Bechet's Disease but there is no straight out test for that. The first time it happened about 2 years ago, I was first given acyclovir which did nothing and then I was given valtrax and it still continued to get worse. Finally I was admitted into the hospital s I was unable to eat or drink due to the pain from all the ulcerations in my mouth along with no skin being on my lips. They gave me a saline solution and antibiotics for 3 days until my lips started to crust over and I was able to eat soft foods again. They were unable to tell me what caused it. The blisters on my skin gradually skrink down and disappear leaving a dark brown scar. My lips eventually regrow skin as well as my penis which loses the majority of its skin on the head. There is no pain from urinating except that caused by the urine touching the open skin on the outside. Pus does seem to come out of the open wounds. Any insight would be nice, I would like to know what this thing is. I'm 27 years old and african american, born in NC and raised in NY. I've never been out of the country. I'm married and whatever it is it isn't contagious as my wife has never been affected by it.Hello,About 6 months ago, sores simultaneously developed on my lips, and around my anus and up along the glutial cleft. Both areas have been very red and scaley, with intense itching and burning as well as a clear seeping fluid when scratched. I was at first told by my GP that I had cold sores, and was given valtrex, but it was later determined by a dermatologist that I had a rare form of psoriasis of the lips, as well as inverse psoriasis. I have had nothing inside my mouth or throat (that sounds very unpleasant!) I did have a brief reprieve from my symptoms for about a month, but in the past week or so, the symptoms have returned, and my lips are once again red, burning and itchy along with the lower portion of me! I have only been sexual with my common-law husband of over 20 years, so I'm pretty sure it is not a sexually transmitted disease. It sounds very similar to what you have been experiencing. Does ANYONE out there know what this could be????
    Anonymous 42789 Replies
    • September 30, 2007
    • 07:51 PM
    • 0
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