Discussions By Condition: Rare Disases

Question about Ankylosing Spondylitis

Posted In: Rare Disases 1 Replies
  • Posted By: Anonymous
  • January 24, 2007
  • 02:09 PM

I went to a rheumatologist because of what I thought was rheumatoid arthritis in my hands. My RF factor was negative so they gave me a diagnosis of OA for hands. They also took x rays of my spine as I have had back trouble for 8 years (around the time my arthritis started). No one has ever treated the back pain-just said I pulled a muscle or that it is an old injury. Anyway I have also been anemic recently ( had two pints of blood to bring levels up-gone in weeks, then had iron infusion in June-so far it is holding good). I am MAJOR tired all the time. So far they are saying the back arthritis is just OA ( am ONLY 40!) but I am wondering if it is the spondylitis? Neither my family doc or this doc seem to be listening!
Michelle

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  • I went to a rheumatologist because of what I thought was rheumatoid arthritis in my hands. My RF factor was negative so they gave me a diagnosis of OA for hands. They also took x rays of my spine as I have had back trouble for 8 years (around the time my arthritis started). No one has ever treated the back pain-just said I pulled a muscle or that it is an old injury. Anyway I have also been anemic recently ( had two pints of blood to bring levels up-gone in weeks, then had iron infusion in June-so far it is holding good). I am MAJOR tired all the time. So far they are saying the back arthritis is just OA ( am ONLY 40!) but I am wondering if it is the spondylitis? Neither my family doc or this doc seem to be listening!MichelleMy daughter is 32 yrs old she was having numerous sympons for 8 yrs before she was finally diagnosed with AS. We have since discovered that her primary care doctor had the diagnosis 6 yrs prior to her being told she had AS. She is totally fused in her spine from the Lumbar to the Cervial region. She is now bent with a 90 degree curve in her back. Her doctors always told her the back pain was normal for a young woman in her profession, she is a nurse. She is totally disabled. Don't let the indifference of your current doctors, stop you from finding a doctor who will listen to you. The Cleveland Clinic told my daughter that "no one in this day and age ever get to the advanced stage of AS that my daughter is in." It is normally diagnosed in time to at least start a treatment that will slow its progress and they can brace your spine so that you fuse in an upright position. Keep looking for a Rheumatologist that will listen to you. Ask them to perform a spine xray and do an HLAB27 blood test. Good luck! Rhonda from Ohio
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