Discussions By Condition: Rare Disases

Protein S Questions

Posted In: Rare Disases 0 Replies
  • Posted By: Anonymous
  • October 9, 2010
  • 10:53 PM

I just came out of the hospital, found out I had several blood clots in my lungs. They did all the genetic testing on me and moved me to ICU. Still no one know's why this has never happened before, I had 2 healthy kids normally. That first night I was put on life support and put in a coma for a little over a week. I was taking the warfarin and the levonox shots, but now I just take the warfarin. The doctor has been trying for over a month in a half to get my blood level between 2-3 and I got to 1.9 but now I keep going down I'm at 1.5 wich is when I first got the clots. I have to be on the warfarin for the rest of my life. Now I just had a seizure and was rushed to the hospital again. I want to know what was cause that, the warfarin or the diseases? Because is this something now I'm going to have to watch?

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