I just received my diagnosis of PML. I was just wondering if there are others, or if someone may know of another (a loved one or friend perhaps), that has been diagnosed with this.
I'm curious about the experiences of others ... the progression, how fast did each part evolve, the nature of each, loss of cognitive function (how rapid, how extensive), nursing or hospice care that may have been needed, etc.
Of course, each case is individual ... I'd just like to know about other cases and get some sort of idea of how those may parallel with mine.
All information is immensely appreciated ... more than you could possible know.