Discussions By Condition: Rare Disases

Maffucci Syndrome Web Site

Posted In: Rare Disases 0 Replies
  • Posted By: Anonymous
  • December 15, 2010
  • 08:53 PM

If you are a sufferer of this disease, or a family member, friend, physician etc with experience of the condition, we would love to hear from you.

My wife has suffered with this disease for 45 years, and my son is now putting together a dedicated web site.

For more information, please see an introduction and contact page for the site at www.maffuccisyndrome.org

We look forward to hearing from you.

_JM

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