Discussions By Condition: Rare Disases

Lemierre's Syndrome

Posted In: Rare Disases 1 Replies
  • Posted By: sunflwz2
  • July 17, 2008
  • 05:30 PM

Hi there! I'm actually posting this to bring more awareness to this nasty disease that seems to be ALWAYS misdiagnoised! My little brother was misdiagnoised with Strep thtoat with out the Dr doing a throat culture. We found out 3 weeks later he had Lemierre's and he passed away 3 weeks after that. check out his website for more information and also leave us a comment!



Tammy :(

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  • I am so sorry to hear about your brother. It almost took my life too,. Heres my story: I was diagnosed with lemierre's syndrome and was hospitalized for 16 days…I am a female and 28 years old. Very healthy.I was admitted on 9/7/11 into the Emergency room because I was so tired and had no energy. I laid in bed for three days throwing up everything I ate and became extremely dehydrated. I had went to my doctor a week before he said I had strep throat and an ear infection and gave me 5 days of antibiotics which did nothing…When I was admitted to ER I was immediately hooked up to an IV. I had the shivers sooooooo bad. My entire body would shake because I was so cold. My fevers were an average of 101-103. I was quickly moved up to ICU were I remained f or 16 days. I was hooked up to SO many machines and it took about four days to discover what I had. At that point, I turned yellow from jaundice, my kidneys started to fail, my throat swelled up from the blood clot which also traveled to my lungs. I had issues breathing so for three days I was on a ventilator which was terrifying for my family. I had to have blood transfusions for 5 days because I had FOUR blood plates which anything under 20 ,000 is life threatening. I don’t remember much, they had me knocked out for most of it, almost comatose. I had so much blood taken, every test you can imagine. They had to keep me drugged up because they had a feeding tube in my mouth for almost two weeks. It was terrible!! Eventually the many antibiotics started working and after about 10 days I was able to eat real food. I was admitted to Saint Peters Medical center here in New Jersey. I had a terrific team of doctors. I thank god everyday that I am still here. Many times they weren’t sure if I was going to make it. I went home and remained home for about 11 days, I couldn’t walk much for a few days. I am not out for 17 days! And I feel great! So far no side effects (knock on wood) my strength is back, I feel as if nothing happened to me. Although I lost about 14 pounds lol. My doctor said I can’t get it again, does anyone know if that’s really true? I guess I am terrified of it coming back. I never felt so bad in my life. Remember we survived and we are very lucky. I feel bad for the ones who didn’t make it. Thank you all I just wanted to share my story.
    Annagbaby 2 Replies
    • October 11, 2011
    • 04:14 PM
    • 0
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