Discussions By Condition: Rare Disases

Kawasaki Disease

Posted In: Rare Disases 6 Replies
  • Posted By: Anonymous
  • July 29, 2006
  • 05:14 AM

Does anyone know anything about Kawasaki Disease? My grandaughter has Arthritis, however I don't think that is all she has. Symptoms she has:

Chest pain
peeling hands
severe pain all over
fast heart rate
fever of unknown origin
back pain
hard to walk at times
swellling of hands and joints
can't remember all the symptoms

She is in severe pain all the time, doctor refuses to give pain meds. She is 10 years old, and is basically an invalid.

If anyone can help with trying to figure out what this is, lord knows that the doctors are helping.:confused: : :mad:

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6 Replies:

  • My daughter (7 months old) was recently diagnosed with Kawasaki disease. The fever, peeling hands and feet, swelling hands and feet, pain in the joints, difficulty walking, extreme irritability, hive-like rash, those are are symptoms.You should insist on a CBC and other blood work. If she has Kawasaki her white cells and platelets will be elevated, as will other levels...you should also request an echocardiogram since she is having the chest pain.We have spent almost the last two weeks in the hospital receiving treatment for my baby. It has been an unbelievable experience for me. I had never heard of this disease until they did the blood work on my daughter.I wish you lots of luck and please do not waste any more time. They say the patient should be treated within 10 days of onset of symptoms. My daughter went over a month.....we are hoping she does not end up with heart problems because it took so long to diagnose.
    Anonymous 42789 Replies
    • September 30, 2006
    • 01:59 AM
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  • Hi can you please tell me if the fever stays persistant through out the time my son had a fever for first 4 days and then fever at night for 2 days now he is normal and no rash was ever found. The doctor had a fear that it might be KD but since there are no other symptoms and his blood and urine test came clean she is rulling this possibility out. She also said that she wants to wait for a culture to come back. Today is the ninth day can you please share some more details. I can also be reached at sourcefactor@gmail.com. Please please respond.ThanksMy daughter (7 months old) was recently diagnosed with Kawasaki disease. The fever, peeling hands and feet, swelling hands and feet, pain in the joints, difficulty walking, extreme irritability, hive-like rash, those are are symptoms.You should insist on a CBC and other blood work. If she has Kawasaki her white cells and platelets will be elevated, as will other levels...you should also request an echocardiogram since she is having the chest pain.We have spent almost the last two weeks in the hospital receiving treatment for my baby. It has been an unbelievable experience for me. I had never heard of this disease until they did the blood work on my daughter.I wish you lots of luck and please do not waste any more time. They say the patient should be treated within 10 days of onset of symptoms. My daughter went over a month.....we are hoping she does not end up with heart problems because it took so long to diagnose.
    Anonymous 42789 Replies
    • December 21, 2006
    • 06:57 PM
    • 0
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  • message to the lady whose granddaughter has been diagnosed with arthritis and fears kawasaki is to blame, my daughter who is 6 is still suffering with kawasaki, she was hospitalised for 2 weeks before diagnosed. she had a fever for all 14 days, blood shot eyes, severe swelling to hands and feet, severe swelling in lymph nodes in neck, red swollen cracked lips, extremely irritable, rash that covered her body, peeling of hands and feet, she still has enlarged heart that was reported by cardiologist to be bleeding in the walls of the heart, after treatment with gamma globin and asprin she done really well and is on the road to recovery i hope. due to the damage to her heart we dont know the long term effects as she was not diagnosed for so long- see a specialist and get her heart looked at - seek a second opinion, or a third or fourth - god bless your grand daughter and i wish her well - good luck
    Anonymous 42789 Replies
    • January 16, 2007
    • 03:15 PM
    • 0
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  • Hi can you please tell me if the fever stays persistant through out the time my son had a fever for first 4 days and then fever at night for 2 days now he is normal and no rash was ever found. The doctor had a fear that it might be KD but since there are no other symptoms and his blood and urine test came clean she is rulling this possibility out. She also said that she wants to wait for a culture to come back. Today is the ninth day can you please share some more details. I can also be reached at sourcefactor@gmail.com. Please please respond.ThanksFevers can last 2 weeks.It sounds like Kawasaki. What you can do to treat it is to learn about alkaline/acid diet and administer anti-inflammatory foods to the patient. Avoid feeding nightshades as they cause inflammation. Avoid acidic foods such as milk, rice, and wheat, and sugar.Take care.
    Anonymous 42789 Replies
    • January 17, 2007
    • 04:29 AM
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  • My daughter who is now 29, was born with Juvenile Rhuematoid Arthritis and all the symptoms you describe she has had also. I would watch for problems of the kidneys, she had reconstructive surgery on her kidneys at 6, they seem to go hand in hand. Bad headaches, body aches, fevers for no apparent reason, or so it seemed. Here in San Diego I finally found a wonderful Dr. who got it right and got her on the right medicines and sent her to a speciality clinic for JRA patients. Her life hasn't been without its down time, but for the most part it has been pretty darn normal. If you think her Dr. is wrong, keep looking, I did. She has JRA in every part of her body, her eyes, her lungs and is tested for lupus yearly. She lived on 4 aspirin and 4 advil for years then vicodin through the really bad times. But you will find there can be years of good, hang in there and good luck. You can contact me if you would like, talking helps. Email me at tannahfallet@cox.net
    Anonymous 42789 Replies Flag this Response
  • My 5 year old daughter suffered from Kawasaki Disease from October 2006 until February 2007, when she finally received diagnosis. Thankfully, though her pediatrician couldn't diagnose the problem because all of her lab work was normal and white blood cell count not significantly elevated, she requested that we give her a double dose of Ibuprofen every 4 hours while we waited to see a specialist. This at least helped her with the pain, and she was able to return to school. The doctors tested my daughter twice for arthritis, but the results were always negative. After two weeks of the intense amount of ibuprofen, her skin began to peel; but we were relieved because the fevers were maintainable. Her peditrician weaned her off of the ibuprofen, and we were finally seen by a genetics specialist at our children's hospital. The peditrician was expecting a diagnosis of arthritis, but instead we got Kawasaki disease. We went the next week for a an echocardiogram, and we were told that most patients recover from any heart complications within 6 weeks onset of the disease. It was 7 weeks when we had the echo, and my daughter's heart was fine. We also are believers in prayer. I had a peace from the moment my child was sick that it would turn into a big thing, but to trust God to be bigger. My daughter has had no complications from the disease which is usually the case. About 80% of those diagnosed go on to live without complications. I also learned that Kawasaki typically happens with children 5 years or younger. Either way, I definitely would get a 2nd, 3rd, or even 4th opinion.
    Anonymous 42789 Replies
    • August 17, 2007
    • 06:18 PM
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