Does anyone else suffer the symptoms of HYPP and have had problems getting it diagnosed? I have had symptoms since Jan 2006 (I am 28), and have linked weakness and paralysis to stress, potassium foods, tiredness, rest after exercise and probably some other unknown quantities too. I also have less frequently, muscle spasms (Mytonia). I also have been diagnosed with psoriatic arthritis in 2004 but the symptoms are distinctly different from these nwe ones. NHS are crap first Neuro said nothing wrong with me, second sent me to Oxford after I specifically asked for HYPP tests, but Oxford did not do them - only an EEG which suprise suprise was normal (Duh) and still awaiting genetic blood tests which although may be neg does not mean I don't have it. It could be quickly diagniosed in 2 hrs with the oral K test but nooooooooo . . . they have to waste my time NHS money and resources looking at the wrong things! I have contacted a London specialist and awaiting tha PCT boards decision on whether they will fund it. Conflicting views from several Drs. Best one was from my 1st Neuro who Quote " It is unlikely you have it as it is a rare condition". Very professional opinion. I have had 3 Drs say it seem like I have HYPP 2 say its not and the rest don't know as never seen it. SO WHY NOT DO THE SODDING TEST!!!!! AAAAAAAAAAAAAAAAGH! Sorry it is getting me so frustrated as I had to leave 2 jobs and now on IB. This really sucks!
Anyone in a similar position?
PS I have already posted this as an unregistered user under muscle conditions a week ago but not a single reply! Then I read it is really a rare condition ! Yoik.