Discussions By Condition: Rare Disases


Posted In: Rare Disases 3 Replies
  • Posted By: Anonymous
  • April 3, 2006
  • 02:11 PM

I have crohn's with no symptoms except mild diarhea. I could not grow until the doc gave me prednisone, Imuran and pentasa. These seem to help.
All though I can't help but wonder if it hasn't been misdiagnosed because I have no pains, in the stomache or the bones. I only get tired at times and need sleep. ??? Is it really crohns

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  • I was diagnosed with Crohns after going into and out of the hospital for over a year back in 1980. If it is Crohn's, be glad they diagnosed it early and that the year is 2006. I had two experienced surgeons, one Gastroenterologist, one infectious des. specialist, and my pediatrician ... plus a whole team of resident doctors (yes, a teaching hospital) puzzled. Finally, my pediatrician made the diagnosis and the gastroenterologist confirmed it through pathology lab testing. If you were diagnosed by a Gastroenterologist, and photos or biopsies of cells were said to show Crohns, that is the correct way to know for sure.I hope your's remains almost unnoticeable to you. It really is best that way.
    Anonymous 42789 Replies Flag this Response
  • Hi, I am a GI nurse, not a physician. Have you had a colonoscopy with biopsies of the small bowel (illeum)? That is the best way to know for sure. Ulcerative colitis is another chronic inflammatory bowel disease, but is confined to the large intestine. Though you may not have many symptoms, be sure you see your gastroenterologist regularly. There are many complications and risk factors associated with Crohns disease (including colon cancer and fistualas) and it is best if you are under the care of a specialist. I wish you the best!
    Anonymous 42789 Replies Flag this Response
  • I am sorry to hear about your diagnosis. I have been dealing with this awful disease since 1991 and it has put me through so many changes. My syptoms/pains change yearly and I have not had a year in remission to this day. The longest time I had symptom free is when I was pregnant with my son in 1995 - six months later, it was on again and worse than before. So, if you are not having any pains and the doctor's diagnosis was correct and you do have Crohn's, then I would thank the dear Lord (or whomever you pray to, if you pray - I don't want to offend) and ask that you never have any more symptoms. Right now I am in much pain so I am going to go to bed now. Wish you well.
    Anonymous 42789 Replies Flag this Response
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