Discussions By Condition: Rare Disases

Cadasil can anyone help me!

Posted In: Rare Disases 2 Replies
  • Posted By: addy55
  • July 14, 2007
  • 10:16 AM

Hello, I have been told that I have Cadasil.....is there anyone who has this
because I just need to know How it will effect my life....I am hoping to lead a normal life as possible, but because it is a rare Disease....there is not alot of information about this.....I must admit I am worried...being honest here.
So if any other suffer has this condition, I would be grateful if you could share your thoughts and views. Thank You

Kind Regards Addy:confused:

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2 Replies:

  • HiI am sorry to hear about your diagnosis. This disease is in my family also, although I have not been tested so dont know whether or not I have it. There is a Yahoo Cadasil group that you might want to join, and also a website dedicated to Cadasil. If you google Cadasil and Earthlink you should find it. In fact, if you Google Cadasil, you will find this site (you probably already have).Although the illness is rare, there are a lot of people out there who can offer you help and support.Sophie
    Anonymous 42789 Replies
    • August 22, 2007
    • 03:08 PM
    • 0
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  • Hi I am sorry to hear about your diagnosis. This disease is in my family also, although I have not been tested so dont know whether or not I have it. There is a Yahoo Cadasil group that you might want to join, and also a website dedicated to Cadasil. If you google Cadasil and Earthlink you should find it. In fact, if you Google Cadasil, you will find this site (you probably already have). Although the illness is rare, there are a lot of people out there who can offer you help and support. SophieDear Sophie, Thank-you so much for your kind email, it is very good to know that I am not alone.I will look into the links you have sent me...and thank-you once againMy best wishes to you and your family.Addy
    addy55 1 Replies
    • August 24, 2007
    • 09:51 PM
    • 0
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