Help- 18 year old boy admitted to hospital with what we believe now was a adrenal crisis, nausea, vomiting, acute stomach pains, over the next three weeks is in and out of hospital drops 18kgs all symtoms point to a crisis, doctors don't see connection. His dads ring family all around the world, telling them he hasn't much time left.
This was over four years ago!.
I met the dad 8 months ago, the story he told me of the past four years you are not going to believe- just when he though all was lost the boy got better, after a week he was nearly 100% but 8 months later again nausea, vomiting severe weight loss, this time it lasted just on 2 weeks and he got better. 1 year later his mental state, starts to deterioate, .
and slips into a third crisis but not so severe this time, nausea, vomiting. weight loss which doesn't go away but instead comes and goes, some time after this psychosis kicks in, dillusional, agitation, agression, hallucinations, and doctor asks "have you done drugs recently" answer "yes" and its like the doctor go ''well there you are,drug induced psychosis".
Put onto olanzapine 10mg, solian 400 , benztrop 2mg, was still on it when I first met the father, the thing was the boy, well man now was still suffering from nausea and vomiting, sometimes bad, some times not so bad, weight would go up and down. The thing was no one was regulating his meds trying different meds, cause he was still dilusional, agigated, some times aggresive, sometimes having hallucinations.
At this stage I only knew about the psychosis, and I offered to look into the medication- well solian 400 stood out, side effects nausea and vomiting for some people, the dad decides to take him off it and benztrop, I suggested he talk to his doctor first, but he didn't- 1 month later no change, maybe it was still in his system
Then something happened but not what you would think-The dad saw a TV program about a girl who died from undiagnosed addisons desease, the symtoms were the same, down to the salt cravings, even putting salt on salads, he told me about the years pryor to the psychosis
I did some research into addisons desease, well the first thing that hit me was, if he suffered a crisis, you dont get better without treatment
So I asked the dad a question that no one had ever asked "Did you give him something?" he replyed "Yes I did" apparently after 3 weeks into the first episode, with all things seeming to be lost, he couldn't hold any thing down, not even water, they got this powder into him called 'Inner Health Powder' available here in Oz, in his words "A little at a time" he started to improve so they gave him more and more, a lot more than the recommended dose. within a week he was nearly 100% as I said before, 8 months later the same again, after two weeks "hey, that powder worked last time lets try it again" and it did. so the third time did they give him the powder, no they didn't.
Whats in the powder?
Acidophilus, Bifidobacterium and Colostrum.
The only connection I could find was addisons and colostum
Some doctors out there say that a hormone in colostum can regulate a over active or underactive immune system or maybe because bovine colostrum has powerful antibacterials and that the boy has a bacterial/fungal problem?
or an enzyme, licorice root was used once to treat addisons desease- I don't know
To the doctor they went for blood cortisol test, guess what "normal"
An morning reading of 497 from memory, they asked to be refered to a specialist- waist of money all he wanted to do was focus on the psychosis,
asked no questions, apart from "what do you want out of life" to the young man, HELLO!
All seemed lost, what next?
Then, one evening four months ago, the young man gets upset dillusional, agigated, I must add he was back on the meds again but the olanzapine had been increased to 30mg solian still 400mg and epilin.
Well the vomiting increases, cant hold anything down, loses about 8kgs in 3 days, bounced around psyche wards around the city-cause it must be drugs, yes marijuana was a problem but not a big problem, the boy said it made him feel normal? when I first met the dad he said drugs weren't the problem, I said boys lie, get him drug tested, he did came back negitive for THC and amphetimines.
So he's in hospital, they can't see past drugs and psychosis,I told the dad to ask for another cortisol test, ACTH test, Before the window closes, or at the very least try hydrocortisone and florinef, if he gets better their is a problem
well they didnt, two weeks later they did the test, guess what-"normal"
Where to now?
Four months later and to present day, he is still in the same psyche ward, one nurse saying "He doesnt belong here, he's not like the others"
The vomiting did subside to occasionally, he hardly eats, I think for fear of vomiting, and I must add he showers a LOT, says his skin is hot, prickly.
I believe the doctors are going to take him off the meds, probably cause they are not working.
Doctors here in Australia dont seem too link psychosis and addisons or is it something else?
Public health system in oz is a disaster, and the fact we cant get anybody to listen
I know I havent given you much to go on, as in medical test results, hard to obtain here.