Hi, I am an Ex glass fuser/welder of 10 years (in the 70's) In 2003 I was DXed as being in the begaining stages of asbestosis. Benign asbestosis. After open lung surgery this May they found I've been in Respiratory Failure for a while, tissue that presented as Hypersensitivity Pneumonitis and Atypical Mesothelial Hyperplasia.
The only logical onset of HP was 6 years ago after exposure to a busted waterpipe in an apartment I used to rent. I should be well over that by now and I'm not. My health is degenerating. My PFT are worse each year. The chest/ rib pain has escalated since its first being DX'd as costrochondritis. (which is not progressive) All of the information I have read about Atyp Mesoth Hyperp points towards it being mesothilioma in situ, pre-cancerus mesothelioma. My questions to the universe. My MD's admit they don't know doodely. LOL!!
#1 Is there any one out there who has asbestosis that stayed benign and was it extremelly painful?
#2 Has anyone out there in the wide world of www land ever been DX'd with Atp. Mesoth. Hyperplas? And was it extremely painful?
#3 How was it treated?
#4 Has anyone had "Chemo- Prevention " treatment of this disease?
#5 Any one even ever heard of it before?