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Vitamin B12 deficiency is commonly misdiagnosed.

Posted In: Medical Stories 17082 Replies
  • Posted By: Anonymous
  • February 17, 2007
  • 00:51 AM

I diagnosed myself at the age of 21 with vitamin B12 deficiency. The only sign I had was enlarged red blood cells, no anemia. I am now 43 and have been an ER R.N. for 20 years and have also been researching vitamin B12 deficiency and pernicious anemia for 20 years. I frequently encounter patients who have signs and symptoms or are at high-risk for B12 deficiency, but doctors do not test. The one's that rarely do--- are not ordering a more sensitive test than the serum B12 test. All patients should always have a methylmalonic acid test, along with serum B12 (to aid in diagnosis). Out of frustration, witnessing patients who needed to be tested, and teaching doctors how to diagnose B12 deficiency, I co-authored the book, "Could It Be B12? An Epidemic of Misdiangoses," Quill Driver Books, 2005. 12 reviews on Amazon.com (3 from physicians). Many disorders or diseases don't have a treatment--- but B12 deficiency does. It is criminal for patients to sustain neurologic injury or permanent disability because health care professionals are not educated properly on B12 deficiency. This is a totally preventable and treatable disorder. My mission is to get a standard of care change in the early diagnosis of B12 deficiency to prevent poor health, injury, disability, poor outcomes and even death. Major malpractice cases have been won by patients who are permanently injured.
All seniors who fall should always have B12 deficiency ruled out with methylmalonic acid testing. B12 deficiency can cause gait and balance problems, tremor, orthostatic hypotension, parasthesias, confusion, dementia--- which makes a patient high risk for falling----- yet there is no standard of care to check seniors for B12 deficiency when they present with a fall. This is currently a project I am working on. I have seen many patients who have fractured their hip or femur--- who proved to have true B12 deficiency. We are wasting billions of dollars and more importantly affecting millions of lives being ignorant regarding this disorder.
Recent article I wrote for "Nursing 2007" January issue regarding B12 deficiency and the elderly. In addition, anyone with beginning dementia or with a diagnosis of dementia needs proper screening to rule out B12 deficiency. There is a critical window of opportunity to treat B12 deficiency or permanent injury will result.

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  • You have to insist on a MMA and homocysteine test. Find out what your serum B12 level was. Doctors mistakenly state that your B12 is "normal" if it falls within the labs accepted range. But, many patients who fall under 400pg/ml have found to be deficient by ordering the MMA and Hcy test. Your symptoms absolutely sound like B12 deficiency, but you also could have some other neurologic disorder (like MS)--- but don't forget MS and B12 deficiency have similar signs and symptoms and are both demyelinating diseases. Doctors also mistakenly believe that a patient has to be anemic (low hemoglobin/hematocrit) and/or macrocytic to suspect B12 deficiency---- this is untrue. If you have had any B12 pills high dose (or injections) or sometimes even injections of steroids can screw up the lab tests. Before you start taking high dose B12 on your own--- you must get the tests to see if you really have it--- because if you do---- then you have a diagnosis and they aren't going to be guessing and putting you through other tests. It also will dictate how you are treated (series of injections--- etc.) and that this is life-long. Also, if you are found to be truly B12 deficient, then your doctor has to find out why--- autoimmune disease (pernicious anemia), malabsorption problem (ie celiac disease) etc. BTW: Lhermitte's sign is also a sign of B12 deficiency.Your doctor must properly rule out B12 deficiency--- because B12 deficiency has a treatment--- and neurologic injury can result--- I'm sure your doctor doesn't want to injure you or have a malpractice case against him/her if you prove to have a B12 deficiency. All it is --- is simple screening/testing, just like they screen for thyroid disorders or diabetes, you need to be screened for B12 deficiency with more sensitive tests. Time is ticking. Many patients that have contacted me regarding their diagnosis and misdiagnosis --- have used our book as leverage--- to get their doctors to test them--- kind of sad, but whatever you got to do. An excellent journal article to refer your doctor to is from Post-Graduate Medicine ---July 2001 (2001;110(1);99-105. Titled: Approaches to vitamin B12 deficiency: Early treatment may prevent devastating complications. By: Dr. T.S. Dharmarajan. They can download it for free--- you can too. Discusses MMA and homocysteine. You being only 28 years old--- probably makes them not think vitmain B12 deficiency, but many young adults have B12 deficiency for a variety of reasons--- but I am proud that they at least did a serum B12 ---- but it is not good enough.You can contact me via my publisher if you need help: (800) 497-4909
    Anonymous 42789 Replies Flag this Response
  • Skeeter, I will check out the Pernicious Anemia Society---- thanks! :D Sally
    Anonymous 42789 Replies Flag this Response
  • Hi Snoopy24, Like you, early on I had stomach problems with acid reflux. At first, I used antacids then Tagamet (cimetidine) for about 6 months and finally my stomach was somewhat better for about a year. Then my other problems started....being tired all the time...sleeping 14 to 18 hours a day, having headaches that got to the point of being there 24/7, numbness and tingling in arms and legs. Your symptoms of sore mouth and tongue are very much symptoms of pernicious anemia (PA).You said that you had an MRI...What part of the body did you have it? Sally is right..in that the symptoms of B-12 deficiency can be the same for MS. Usually doctors do MRI's of the brain and spinal cord to check for MS. Keep pushing your doctor for answers. In the link below, is alot of helpful info. Print yourself a copy of it and take it with you the next time you go to the doctor.www.pernicious-anaemia-society.org/pa-article.pdfIt will tell you: What pernicious anaemia is...it will tell you what the symptoms are...what tests are done to determine if you have it...what the treatments are. If you have pernicious anaemia...what other tests you should have done.If, after reading this info...and you still would like more info...check out the website I have posted in my previous posting. It is a very good website...with alot of people there (me to) that can help with answers and links to answers.TAKE CARE...SKEETER.
    Anonymous 42789 Replies Flag this Response
  • Sally, Skeeter, thanks so much for replying. I'll check out the links and articles mentioned. I meant to specify I had an MRI of the brain - so that ruled out MS and other major neurological diseases already. There was nothing suspicious at all on the images. And the two nerve conduction tests also did not identify anything out of the ordinary. Basically, both the neuro and my PCP have thrown up their hands and said that the tests say my body is normal and healthy. I have an appointment with my PCP in a couple weeks, I'm hoping to be armed with some information by then to get him to investigate further. He's a very nice doctor but very old-school, so I don't know how willing he will be to listen to me. I plan on taking a list and timeline of all my symptoms including the ones I didn't mention previously. I'm sure he's going to say, "but your blood count and B12 level were normal...."
    snoopy24 9 Replies Flag this Response
  • Hi, My wife has just been diagnosed with low B 12. The doctor says the lowest level they record is 180 and she is 186.She has serious problems with migraines, fibromyalgia, arthritis, muscle weakness and even infertility.Based on what I am reading in this forum, I see this can be caused by the B 12 deficiency.Her doctor wants her to take one shot per month until he tests again in a few months. Based on what I am reading, will this help at all?It seems like this needs to be more vigorous.Thanks for your help.
    Anonymous 42789 Replies Flag this Response
  • Just found this site, 4:20 AM - have read and posted to several things but seeing your post just made me cry. I am 66 years old, have suffered for years with fatigue, pain, stomach problems, thryrod, erratic and extra heart beats, and have been diagnosed with everything from MS, MG, Fibromyalgia, Chronic Fatigue, Spinal Problems, Neuropathy, pain sydromes, and of course, stress and depression. I knew I wasn't crazy, and just kept my mouth shut until the pain or fatigue would get so bad I would try again. What is so funny, is that a few weeks ago, went to my primary, told him I was going for a consult with a wonder doctor in NYC, and he looked at my bloodwork and said that my B12 was about 400 (I think) and decided to give me a double or triple shot - don't remember. I noticed I was not crying, and my husband thought I was better with the shot, but I didn'tpay much attention. Went to NYC, and doctor said I had an auto immune disorder (Hashimoto's, dry mouth & eyes, etc, etc,) did a lot of blood work, gave me a shot of methotrexate and told me to inject myself once a week, gave me prescriptions for folic acid, Lyrica, Prednisone - and I am not happy with taking meds anyway, so haven't had anything but first shot of methotrexate, due to take another tomorrow. Don't want to - but it is 2 weeks since I had B12 shot - feel like crying again, and, although I don't sleep well, usually stay in bed, but heart pounding in head and chest and pain and cramping in feet, ankles, legs and hips were so bad had to get up at 1:00AM after lying there for only about 2 hours. Doctor in NYC said you can only get B12 shots every 6 months, primary told my husband I can have them weekly if I want to - Do you think I should do this and forget all the meds I was prescribed - I like to do only one thing at a time so I know what helps and what doesn't, and nothing has helped me over the years. I will be ordering your book. Hope that this was my lucky day. Thanks for your info.
    erni119 14 Replies Flag this Response
  • Just found this site, 4:20 AM - have read and posted to several things but seeing your post just made me cry. I am 66 years old, have suffered for years with fatigue, pain, stomach problems, thryrod, erratic and extra heart beats, and have been diagnosed with everything from MS, MG, Fibromyalgia, Chronic Fatigue, Spinal Problems, Neuropathy, pain sydromes, and of course, stress and depression. I knew I wasn't crazy, and just kept my mouth shut until the pain or fatigue would get so bad I would try again. What is so funny, is that a few weeks ago, went to my primary, told him I was going for a consult with a wonder doctor in NYC, and he looked at my bloodwork and said that my B12 was about 400 (I think) and decided to give me a double or triple shot - don't remember. I noticed I was not crying, and my husband thought I was better with the shot, but I didn'tpay much attention. Went to NYC, and doctor said I had an auto immune disorder (Hashimoto's, dry mouth & eyes, etc, etc,) did a lot of blood work, gave me a shot of methotrexate and told me to inject myself once a week, gave me prescriptions for folic acid, Lyrica, Prednisone - and I am not happy with taking meds anyway, so haven't had anything but first shot of methotrexate, due to take another tomorrow. Don't want to - but it is 2 weeks since I had B12 shot - feel like crying again, and, although I don't sleep well, usually stay in bed, but heart pounding in head and chest and pain and cramping in feet, ankles, legs and hips were so bad had to get up at 1:00AM after lying there for only about 2 hours. Doctor in NYC said you can only get B12 shots every 6 months, primary told my husband I can have them weekly if I want to - Do you think I should do this and forget all the meds I was prescribed - I like to do only one thing at a time so I know what helps and what doesn't, and nothing has helped me over the years. I will be ordering your book. Hope that this was my lucky day. Thanks for your info.Talk about "I was not crazy"--- I knew I was not crazy, but I had all these symptoms. I was willing to try anything- even the unorthodox approaches to my unexplained condition.A NAET practitioner told me that I had developed an allergy to Vitamin B complex. So that explained why in spite of me taking the best quality of Vitamin ever made, I had not been able to recover completely.I did NAET treatment for allergies to vital nutrients- ufff I feel 10 years younger. I was allergic to Vitamin B complex, calcium, sugar, egg protein.I am also allergic to Vitamin T. You should try NAET and make sure you will be using the nutrients.Sincerely,Eatafruit78/
    Eatafruit78 960 Replies Flag this Response
  • Eatafruit78,Thanks for writing on this post as I was going to also suggest NAET. I cannot believe how much better I feel after this treatment! IT is just simply fantastic! I am glad you have also had such good results with this:) It really addresses the WHY of B12 deficiency. Often it is due to malabsorption problems and allergies. allergies are a major cause of chronic disease, and NAET is the only treatment available that really eliminates the allergy. I can't recommend this highly enough. Best wishesDOM
    acuann 3080 Replies Flag this Response
  • Eatafruit78,Thanks for writing on this post as I was going to also suggest NAET. I cannot believe how much better I feel after this treatment! IT is just simply fantastic! I am glad you have also had such good results with this:) It really addresses the WHY of B12 deficiency. Often it is due to malabsorption problems and allergies. allergies are a major cause of chronic disease, and NAET is the only treatment available that really eliminates the allergy. I can't recommend this highly enough. Best wishesDOMMy pleasure. We are on the same page. People often think that allergies are like red rash or hives only. In the broader sense, allergies are produced by anything that does not "flow" with our body's energy. Even not been able to use nutrients can be considered an allergy.Nambudripad is ahead of her time- but she figured out how to climb the hierarchy of the body and go up to the Nervous System- which really is controlling the Immune System.If anyone thinks that the Immune System can become a *****d off warrior, wait till you experience what a *****d off Nervous System can do.We need to reason with it, not ask him to shut up. Peace, Love and Light to Everyone.Warm RegardsEatafruit78. (Make sure you eat-a-fruit w/o pesticide). :)
    Eatafruit78 960 Replies Flag this Response
  • To the man writing regarding his wife's serum B12 was in the 180's--- you are correct---getting one shot per month is not enough. She needs to get a series of shots to replace her body's stores (which is a 1mg or 1,000mcg shot every day or every other day x 5 to 7 injections, then once a week (x 4 weeks), then once a month for life. Some people need a shot every 3 weeks. Yes, she needs to get the shots and should! She also can take methylcobalamin 5mg daily inbetween shots. Her doctor can teach her or you how to give an injection (which is very easy)--- prescribe you a vial of B12--- and that way you do not have to go to the office every day etc. If she went undetected for B12 deficiency for a long period and has damage---- some people will improve--- others will not--- but you must remember--- a person with a B12 deficiency has to be treated--- because they will slowly progressively worsen. Your wife may have other health problems going on at the same time---- but she must be treated. Again, I am shocked that doctors are not ordering the methylmalonic acid test to aid in diagnosis. Her doctor is under treating her which is substandard or poor practice. Check out the article I talked about in a previous thread, also our book, and even www.b12.com In the January issue of Nursing 2007 I wrote an article regarding frequent misdiagnosis in the elderly (not that you have to be a senior to get B12 deficiency) but they really get misdiagnosed because of preexisting diseases, co-morbid conditions, and age discrimination. Demand your wife get treated properly.
    Anonymous 42789 Replies Flag this Response
  • To the 66 year old: The doctor that told you --- you could only get a B12 shot every 6 months is wrong. The other doctor stating you could receive one shot every week if you wanted is correct (you could also learn how to inject yourself or have a family member learn). Even though your serum B12 level was in the 400's it is irrelevant--- this is why the doctor must also test methylmalonic acid (MMA) and homocysteine together with the serum B12. I have seen many patients who had a serum B12 in the 400's who had an elevated MMA, were very symptomatic, which proved they had a true B12 deficiency. Now, because your doctor gave you a shot--- it has screwed up your blood work. Your MMA will come back normal. You are very high risk for B12 deficiency (autoimmune pernicious anemia) because you already have Hashimoto's (which is an autoimmune disease) and this is highly linked to pernicious anemia. You also have dry eyes---- which could be another autoimmune disease Sjoren's. Once you have one autoimmune disease---- you are at higher risk of getting other autoimmune diseases (which is called polyautoimmune). You have had signs and symptoms of B12 deficiency for some time---- and you had a positive response from the one injection-----therefore--- you must continue the injections (and get the series--- like written above for the other person I responded to). Also take the methyl-B12 5,000 mcg lozenges daily. Your doctor should also test your blood for a parietal cell antibody, intrinsic factor antibody, and do a serum gastrin. It will be up to you if you want to try the B12 first--- keeping a log of your progress. I agree--- trying to many things at once--- clouds the true drug that is improving you. If you take the methotrexate and the B12 together--- you will not know which one is therapeutic. It sounds like you responded from the B12 --- so continue--- but get the series of injections. Use the hydroxocobalamin form 1,000 mcg/ml ---1ml intramuscular verses using the cyanocobalamin. It comes in a 30ml vial--- and you need a prescription. It is too bad that your original doctor did not do a MMA test on you before he gave you the initial injection---- because if it came back elevated--- it would prove you did indeed had a true B12 deficiency---- and not only would you know why you have been suffering--- but you also were misdiagnosed and would have some legal recourse-- if you have any permanent neurologic deficits.The book will answer all your questions, it will make you mad that your doctor had not tested you properly (or tested you yearly---- for not only were you symptomatic---- but your high risk because of the Hashimoto's, and also your age. In addition, your doctor was mistaken for only checking a serum B12--- can easily lead to misdiagnosis.B12 deficiency can give strange leg pains, kind of like restless leg syndrome--- and can give crawling sensations to legs--- jumpy feeling.Keep a log of your response.
    Anonymous 42789 Replies Flag this Response
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  • I have similar stories to everyone here on the board. I'm 29 year old female, and have had severe dizziness for years, along with recent headaches, and much back pain. I've been to three different doctors for blood work and the normal ENT tests, all come back normal. I've checked my eyes, got a new monitor at work, and a new chair at work. Now, I've had Irritable Bowel Syndrome since I was 14. I'm going to buy your book now, but I have two questions. One, is the Vitamin B group absorbed in the stomach or in the bowels? Two, I just started taking a Super-B pill last night, with good levels of all the different B's. So, my second question is can a vitamin pill work as good as the shots you suggest?
    Anonymous 42789 Replies Flag this Response
  • She is only 38(next week).I do appreciate your response and will follow up.Thanks, Micheal Townsend
    Anonymous 42789 Replies Flag this Response
  • To the 29 year old with IBS: You need a functioning stomach and ileum (last part of the small bowel) for proper absorption. It is a chain of events (several steps) for B12 to be absorbed and transferred. But if you do not have an ileum or it is diseased-- you may get a B12 deficiency over time. Again, as I am telling others---- it is so important to get tested with the MMA and Hcy and serum B12 before going out and taking B12--- because you need documentation if a deficiency was present---- that way it dictates how to be treated, if you should get a series of injections, it may explain signs and symptoms that you had that your doctor blamed on different disorders, and some people have legitimate malpractice cases. If you start taking high-dose B12 before getting tested---- then it clouds the clinical picture--- screws up the test results--- and no one will ever know--- everyone will be guessing. What I would suggest is insist on the B12 , MMA, Hcy test first before taking B12. Then you can start it. I believe injections work better (they do in my own case)--- depends on why one is deficient. Some people do fine on high dose B12 lozenges. But --- anyone who is found to be truly B12 deficient with proper testing--- should always receive the shots to build up their stores--- and anyone with neurologic signs and symptoms or any injury--- is advised to get injections over oral--- they may switch to sublingual--- but need to have their MMA periodically checked and go by how they are feeling. Some people are short responders and need more frequent injections. You can always take the sublingual/lozenges inbetween injections. A super B vitamin may not be enough--- many manufacturers have different amounts in them. Don't go by the % you are getting, go by the mcg. It should always be over 1,000mcg daily--- and sublingual--- under the tongue is better than swallowing. Of course a B50 complex with all the B vitamins is good for you--- but in a B50 complex there is only 50mcg of vitamin B12--- which if you have a deficiency is clearly not enough--- it will say that it is 833% over the RDA--- that is because the RDA for B12 is only 6mcg! This is clearly not enough to correct a deficiency. Yes, you have symptoms of B12 deficiency and have a risk factor the IBS for 15 years---- get yourself tested. Even if your tests come back normal--- give yourself a therapeutic trial and see if it helps your symptoms. Depends how much B12 is in the supplement you are taking and how long you have been on it. Please ----people reading this thread remember how important it is to get tested. It would be like having hypothyroid symptoms--- then you start taking thyroid medication--- start feeling better--- then you get yourself tested and your doctor tells you --- you don't need it. (Now of course you couldn't take thyroid on your own because you need a prescription)--- but you get the idea. There is nothing wrong with taking high-dose B12 (once you get tested) and results come back normal to promote health, try to alleviate signs or symptoms, promote memory-- prevent dementia, decrease homocystiene (which promotes vascular disease).
    Anonymous 42789 Replies Flag this Response
  • My reply to Sally Pacholok, R.N., BSNI have been struggling with some neurologic symtoms like Burning sensation/tingling/numbness in hands and feet, mostly in left side but do see in right side as well and also has cold feet in morning . In last Sept i was disgnose Hashimoto's Thyroidities (Hypothyroidism) since than i have been taking Levoxyl ,m my TSH and FT4 are normal now but i still have fatigue/tiredness/same PN symptoms before it was only tingling and numbness now i have burning sensation as well in the night . My GP tested b12 in oct and it came out 285 which is for her considerably low and need to start B12 supplment orally i started taking 1000mcg /every day . In dec i went to my Neruologist to get some investgation of muscles weakness and PN symptoms. He has done serious test to rule out Mysthania Gravis by testing some antibody test and also perform MMA and Homeostyine. All came back normal accept MMA which was considerably high i don't remember exact value but i can look for my previous result and let you know , however my b12 was normal it was 700. My concern is . Does oral b12 suppement is not working ?. I have been taking B12 supplement since Oct and test MMA in Dec which was high but normal b12 , so that means oral supplement is not really doing anything as i still hav neurologic symptons ?. Do you think Thyroid manifest all these symptoms even though it came to normal after regular dose of levoxyl ?Please advice any help to get my life normal and relief with PN symptoms which is infact getting bit worse than b4 ?I am going to order your book to learn more.Thanks
    Anonymous 42789 Replies Flag this Response
  • Have you been tested for coeliac disease?This causes B12 deficiency and also can cause infertility. nb.(unregistered comment 3/20).
    Anonymous 42789 Replies Flag this Response
  • Just to add some more figures in my last response. My MMA in Dec was 385 which is considerably high , However my B12 in Jan was 900 so oral B12 supplement did increase the level but did not subside my symptoms. Do you think i should be taking B12 Injection ?. I am taking B12 supplment which has cyanocobalamin, do you think i should take the one which has methylcobalamin ?. Does B12 test has any significance even values are above normal but MMA still shows B12 deficiency ?.Any help is greatly appreciate it .
    Anonymous 42789 Replies Flag this Response
  • Thanks for your response! I will go and get all three tests right away. Your book arrived Friday and I'm half way through it already. Easy and Informative read. I'm really enjoying it.Quick Question. How long after I stop taking an over the counter Vitamin B supplement should I wait until I can get accurate results on all the tests?
    Anonymous 42789 Replies Flag this Response
  • This is an excellent teaching case that perfectly demonstrates how high dose oral B12 is not effective in many cases. Your signs and symptoms of PN, fatigue, tiredness, burning and now muscle weakness are from B12 deficiency--- and the oral B12 is not effective in your case. It is not getting through the blood-brain barrier---you need to immediately start B12 injections (hydroxocobalamin 1,000 mcg daily x 7, then once a week x 4) and then go with how the neuro symptoms are going. Your serum B12 of 700 is irrelevant--- it is 700 because you have been taking orally 1,000mcg a day for about 2 months----- but your neurologist proved that your B12 deficiency is still present and the oral B12 is not effective--- because he was smart enought to order the MMA which is still elevated. When the MMA is elevated that means you have a B12 deficiency---- the serum B12 test can pick up analogues in your serum and report out high level from taking oral pills--- but it is not getting through to the nervous system or brain-- so the damage B12 deficiency causes---- is still going on. This is why when people start taking oral or sublingual high-dose B12 on their own--- before getting proper testing can really cloud the clinical picture (ie. lab tests) You having Hashimoto's (which is an autoimmune disease) is common for people to have B12 deficiency because one reason people get B12 deficiency is from an autoimmune disorder called (autoimmune pernicious anemia). People who have pernicious anemia need to have their thryoid checked yearly (because they are at higher risk of getting other autoimmune diseases----especially thryoid--- which is Hashimoto's and Grave's disease. You have to get on injections immediately--- your goal is to reverse the neuropathy---- now you are having muscle weakness----- which the B12 deficiency is progressing---- this is serious--- you can end up in a wheel chair or using assistive devices to ambulate and permanent painful neuropathy, among other problems. Again, I am so pleased your neurologist ordered the MMA---- this is proof the B12 deficiency still exists--- and you had a serious B12 deficiency. Maybe it would have been even higher before taking the pills--- but injections will bring down the MMA rapidly. The goal is to reverse your neuro S/S and any damage. You having a serum B12 of 285 and signs and symptoms of B12 deficiency (numbness of hands and feet, burning sensation, fatigue, etc.) indicated your signs and symptoms were caused by B12 deficiency. Your first doctor or family doctor should have ordered the MMA and homocysteine before placing you on high dose oral B12 (1,000 mcg). (even though a B12 of 285 and S/S of peripheral neuropathy indicates B12 deficiency)--- so I am proud that he/she determined it was B12 and started you on B12--- but you should have received injections--- and you wasted 2 months where your body is still deficient--- and you are now getting more symptoms. Start getting the injections immediately and in 3 weeks repeat the MMA and you will see it in the normal range.You are correct the oral B12 is NOT working, this is B12 deficiency--- not thyroid. I don't understand how your neurologist did not see that the oral B12 was not working, and see through the serum B12 of 700---and place you on a series of injections---- because in your history you have been taking 1,000 mcg orally x 6-8 weeks--- which will correct the blood B12--- making it appear that everything is fine--- but it is not--- and your neurologist proved it by you still having an elevated MMA. I cannot stress how critical it is to get on injections immediately--- time is of the essence--- because you want to reverse as much nerve damage that has been done. Also, do not let them give you only one injection--- or 100mcg---- you need a series of injections and 1,000mcg each--- and hydroxocobalamin would be preferred over cyanocobalamin. If you have any further problems getting treated or need me to speak with your doctors regarding treatment I would be pleased to do so. I can be contacted via my publisher (Quill Driver Books 1- 800- 497-4909) and they will connect us together. Your case clearly demonstrates why oral, SL, and even patches may not be in people's best interest. I do not object to these forms in-between monthly injections (once the series is given)--- but when one stops and educates themselves on what B12 deficiency does to the body--- causes demyelination--- just like MS does--- and can permanently damage nerves-- cause permanent brain damage--- cognitive problems, dementia---you can't play around with this. Misdiagnosis, undiagnosis, or delayed treatment, or poor treatment can all result in permanent injury or disability.
    Anonymous 42789 Replies Flag this Response
  • Thanks a lot for your reply . I just faxed your response to my GP so she can start B12 injections. I have been struggling with this for last 8 months , they have started Antidepressant (Cymbalta) , Gabapentin (100mgx4) but none of those medicine seem to be working . I started having muscles weakness much more severe than before..I used to sleep with my hand under my pillow whole my life but unable to sleep that way for last 8 months and now if i have my hand under my head it just went to sleep (numb) .. I get tired too soon , also having eye floaters ... could that be because of B12 also.I am hoping my doctor start B12 injections that give my life back.
    Anonymous 42789 Replies Flag this Response
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