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Rena Oncocytoma with Kidney Stones

Posted In: Medical Stories 0 Replies
  • Posted By: Genealogylady54
  • January 3, 2014
  • 01:53 AM

Last May I landed in the local emergency room with terrible pain in my right side and vomiting!  After checking with an ultrasound and getting the pain under control, I was told there was nothing on my right side.  I agreed at that point to have a CT scan with contrast to find out what was causing the pain.  I was surprised to find that they found a neoplasm on my left kidney and a 1.7 centimeter stone.  I was told to contact a urologist to check out the tumor which is 4.5 centimeters in size.  The severe pain continued and my urine was full of blood.  Just moving around hurt.  About ten days later I had a kidney biopsy.  After two weeks of waiting I was told that the tumor is a
benign oncocytoma.  Two weeks later the large stone cause a complete blockage.  I was rushed to a larger hospital because our local hospital had no urologist on at the time.  A stent was inserted to push the large stone back into the kidney and I was told that it needed to be addressed.  At this point, I've had two lithotripsies and then the stent was removed (which was encrusted with stones and fragments) and then was told that the only stones left were in the lower pole of my kidney and they usually don't cause a problem...wrong...within six weeks another K. U. B. showed there was a 10 mm stone and large fragments in my ureter.  Again a lithotripsy was performed (just before Thanksgiving), this time without the use of a stent.  My urologist gave me rapaflow and tramadol.  I had my doubts some days, but finally passed several LARGE fragments.  It was painful, but I managed with only taking pain medications one day!  Just a week ago I had a second CT scan done and was told that one 4 mm stone remains in the lower pole of my left kidney and we are hoping it stays there.  My urologist also checked the tumor to see if it has changed in size and at this point it has not.  He will recheck the kidney in three and then six months.  He also asked if I was still having pain in my left side, which I am.  He explained that sometimes it takes a while after passing kidney stones for the pain to fade.  There seems at this point to be almost an ache in my side and sometimes a sharper pain.  Can the tumor itself cause the pain?  Can these types of tumors become cancerous?  My urologist told me that these are nasty tumors, which is why they need to be watched.  After dealing with my Mom with breast cancer many years ago and my sister with ovarian cancer in November, CANCER scares the **** out of me!  I explained this to my doctor.  I've also changed my diet because I have calcium oxalate stones.  I've also started Theralith XL which is suppose to change the chemistry in my kidney.  Any other suggestions?

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