I am a 41 year old female who has had numerous GI issues over the past 4 years or so. I had severe upper right abdominal pain about 4 years ago - went to 3 different GI doctors before the 4th one finally did a HIDA scan to find that my gallbladder was not functioning (all cat scans, MRI's and ultrasounds showed no stones so of course they said it could not be that). So, I had my gallbladder removed. Then, I continued to have pain but this time it was in my lower right abdomen. My OB did a hysterectomy because I had such extreme menstrual cycles and hoped that this would help. It did not. So after about another 10 ct scans, mri's, blood tests, ultrasounds, etc., I went to a colon rectal specialist (in addition to the pain, I had constipation). He did a colonoscopy and said that everything was fine, but he sent me for a defacating proctogram. This test, as excruciating pain it caused, found that I had internal rectal prolapse with an anterior rectocele. I was in surgery the next week to fix the prolapse, but not the rectocele. Now, here I am about 9 months after this surgery with very similar pain. The pain is in my lower right abdomen and radiates to my mid back and after a trip to the ER (I was doubled over in pain) and more cat scans and ultrasounds and a follow up colonoscopy - NOTHING! I cannot sit or stand for longer than 15 minutes without the pain intensifying so badly that I need to lie down right where I am (even if it is the kitchen floor or hallway). It is not my appendix according to the cat scan, I have had my gallbladder and uterus out, so what could it be?? I did some research and it seems that it could be abdominal adhesions/internal scar tissue from the surgeries I have had (the resection rectopexy for the prolapse in 2010, hysterectomy in 2009, and gallbladder in 2008). BUT, doctors seem so "scared" to go down this route. Has anyone had success with their doctor and finding a surgeon to do the laparoscopic surgery to check for and fix adhesions? I am also having urine retention that they cannot find a cause for (I have to self catheter 4 times/day). It seems to fit - if I have adhesions that are pulling on my bladder it could cause that to not function properly and the severe abdominal pain? PLEASE HELP if anyone has run into this previously. I would greatly appreciate your help. The pain is so debilitating that I am out on disability leave now and don't know what to do...
I appreciate anyones help, advice or similar experience
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