Discussions By Condition: Pain

Pain became too much, feel like crying...

Posted In: Pain 3 Replies
  • Posted By: shadeshadow
  • November 7, 2008
  • 08:22 PM


I have come here due to not being able to find any help or information about the type of pain I go through, so I am hoping someone can help at least point me in the right direction.

Recently I was diagnosed with Inflammatory Bowel Disease due to many tests, before this I was in pain across my shoulderblades and down my back, at this time it was not severe but barely tolarable. It has gotten worse, I was taking Co-Cordamel but found it gives intergestion and had to stop taking them for they were aggrivating my other condition. But the fact was they were not even touching the pain at all.

Now the pain has gotten worse and I am at a loss with where to turn, the pain has now spread across the whole of my back, up my neck and partway to the front of my neck, down my arms and into my hands.

My skin has become that sensitive to touch it is like something is hurting me 20 times over with the slightest brush against my nerve endings. Movement is ***l, even shifting slightly can cause my body to flare up in agony and I am getting to the point of crying.

Heat does help but only for a short time, I am hogging a hot water bottle and using it to try to help my back at least some.

I also have slight shaking of the body, it is all over and I cannot stop.

I am very lost, having only been diagnosed with one thing i don't want another but I also hope to find out what it could be. The pain itself in my back is a buring type pain, in my wrists and hands a throbbing type of pain if that helps.

I am a 20 year old Female if this helps.

It has not spread down my legs yet thankfully. But I am wary of that happening.

Hoping for some help.

Shade Shadow

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3 Replies:

  • First off I am sorry for what your going through. I would look into the possibility of RSD, refex sympathetic dystophy. The pain your desribing sonds a lot what I am going through as I have full body RSD. It is basically nerve damge that can be caused by anything from a twisted ankle to a bump or a pin ****k ar surgery. The RSD usually starts in one area but then spreads to other areas even your internal organs. Mine started in my foot but now is full body. I am extreamly sensitive to touch, no one can hug me because it hurts so bad, even a cold breeze hurts. I too am only 21 but RSD can start at any age and is most common in women. Try looking at RSDSA.org or RSDhope they have good info that might help. If it is RSD you need to be diagnosed as soon as possible to start treatment so to stop progression and hopfully go into remission. I hope that this is not what you have, finding a doctor is the hardest. It is said there are 7 million in the US with RSD, but anoth 5 million undiagnosed. Godd Luck.
    nikiski1 35 Replies
    • December 22, 2008
    • 09:42 PM
    • 0
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  • Thank you for that, i will look into it. It is nice to find someone else who is alike, i don't feel so alone anymore...
    shadeshadow 2 Replies
    • December 25, 2008
    • 01:07 PM
    • 0
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  • Your more than welcome, I truly hope you find the answer that your looking for. I know what you mean when you feel along going through what your going through. Before I was diagnosed I saw more than 57 doctors in 7 different hospitals in 5 states, with all the pain I was in, I also especially after not finding anything for so long I started to have family not believe me anymore, but finally I got my diagnosis I still have a long way to go but I know I will get there. Just whatever you do keep believing in yourself and dont let anyone tell you your not feeling what you are. One thing when your looking up RSD, not everyone has the same symptoms at the same time and some dont even get all the symptoms, that is one reason it is very hard to diagnose. If you want to find someone to rule out RSD the best kind of doctor to do that is a pain specialist or Anesthesiologist, very few neurologists believe RSD is a real disease. I really hope you find your answer. Niki
    nikiski1 35 Replies
    • December 26, 2008
    • 00:48 AM
    • 0
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