Discussions By Condition: Pain

I am at my wits end...

Posted In: Pain 2 Replies
  • Posted By: sickofthis
  • June 9, 2009
  • 05:07 PM

In October 08 I noticed some severe pain in my right arm. It came and went over the next few weeks but was never constant. Then the pain started in my left arm. By this time, the pain was constant in both arms as well as in my lower legs and feet. I saw my GP and she gave me a clinical diagnosis of Charcot Marie Tooth. I have high arches, hammer toes, some problems with my gait and mild foot drop. I also have other signs of CMT stemming from my childhood (the inability to run well, clumsiness, constant sprained ankles, etc). I have had all the normal blood tests run and they have all came back good. I had an MRI done of my brain and neck and the results showed that my brain is fine (no signs of MS) but there is some mild degeneration in several of the disks in my neck along with bone spurs and arthritis. The next step was to see the neurologist. Oh what a joy that was!

The neuro looked me over briefly, did his battery of tests (all the while I am sitting down) and then tells me that I'm fine. He orders an Nerve Conduction study to be done. I had that done today. He only did one leg (and not my arm) and then did not proceed to do the EMG. He told me that he was sending me back to my GP to work on another diagnosis. Both times I was in his office he took all of 15 minutes to spend with me. I am highly disappointed.

So what's next? I have chronic pain in my forearms, hands, feet, ankles and lower legs. I take morphine, Lyrica, Percocet and Flexeril. I have horrible muscle spasms in the arches of feet that occur daily, even when I am sleeping. I'm at a loss here. I really want a second opinion from another neuro but my GP doesn't think my insurance will pay for it. Any ideas?????

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2 Replies:

  • Hi SickofThis, I am also sick of having chronic pain. If you have had x-rays of your neck, showing degenerative disks, then this can explain the pain down your arm. Sometimes the bone spurs can press on your nerves, causing pain and numbness in your arms. I have this issue even after surgery. I constantly have pain at my elbow, forearms, wrists and 2 of my fingers. The physical therapist I went to would help by relieving some of the tension in my shoulder and chest and this seemed to help the radiating pain in my arms. I had a cervical fusion done about 4 years ago and my pain has severely increased and intensified, so I would only recommend surgery as a last resort. I go to a chiropractor in N.C. and wished I had known her before my neck surgery. She works wonders in helping me with my back issues. I would recommend that you go to a pain management doctor to manage your medications; they can also follow up with other options, and can refer you for physical therapy, medical massage, aqua therapy, etc. And try to find a good chiropractor. And the main most important thing is to exercise. If you are like me and cannot exercise due to joint stress, ask your doctor to recommend aqua therapy, where you will not stress your knees and body. I am not sure why you cannot get a second opinion. Maybe because the first seems to be conclusive? Most neurosurgeons who I have met will dismiss you immediately if you are not a surgery candidate. The nerve conductive study I had was the same and I thought it was bogus as well, since it did not determine any nerve damage. Since you have to work with your GP who files your insurance, you may want to discuss other options, i.e. pain management doctor. And if you are not satisfied, you should find another GP. You should ask to see a foot doctor for your arch pain. And you may want to try a good acupuncturist. Let us know your outcome.
    wtbfreeofpain 1 Replies Flag this Response
  • Try asking for a scan of your spine and a lumbar puncture to test for any further degeneration of your spine and for possible lesions on your spinal cord. the degenerative discs on your neck may be the cause of the tingling, pain, and spasms of your shoulders, arms, and hands. any further degeneration around your lower spine may be the cause of similar effects of your legs and feet. there may be lesions on your spinal cord that are not present on your brain, so an MRI only on the brain is inconclusive of MS. Keep a record of your symptoms, how often they occur, when they started, how long they last, etc. And pay attention to any NEW symptoms that may occur and only last for a while then disappear.Most Doctors fail to take pains seriously. Their first concerns are your vital signs and any life threatening issues. Most neurologists are heavily based on MRI scans. If they see no big problems with your MRI and see that you are not in immediate danger, they will easily dismiss you.I recommend you keep a health diary.Sincerely,Hikari
    Hikari 7 Replies Flag this Response
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