In October 08 I noticed some severe pain in my right arm. It came and went over the next few weeks but was never constant. Then the pain started in my left arm. By this time, the pain was constant in both arms as well as in my lower legs and feet. I saw my GP and she gave me a clinical diagnosis of Charcot Marie Tooth. I have high arches, hammer toes, some problems with my gait and mild foot drop. I also have other signs of CMT stemming from my childhood (the inability to run well, clumsiness, constant sprained ankles, etc). I have had all the normal blood tests run and they have all came back good. I had an MRI done of my brain and neck and the results showed that my brain is fine (no signs of MS) but there is some mild degeneration in several of the disks in my neck along with bone spurs and arthritis. The next step was to see the neurologist. Oh what a joy that was!
The neuro looked me over briefly, did his battery of tests (all the while I am sitting down) and then tells me that I'm fine. He orders an Nerve Conduction study to be done. I had that done today. He only did one leg (and not my arm) and then did not proceed to do the EMG. He told me that he was sending me back to my GP to work on another diagnosis. Both times I was in his office he took all of 15 minutes to spend with me. I am highly disappointed.
So what's next? I have chronic pain in my forearms, hands, feet, ankles and lower legs. I take morphine, Lyrica, Percocet and Flexeril. I have horrible muscle spasms in the arches of feet that occur daily, even when I am sleeping. I'm at a loss here. I really want a second opinion from another neuro but my GP doesn't think my insurance will pay for it. Any ideas?????