Discussions By Condition: Other Conditions

Undiagnosed Granson

Posted In: Other Conditions 0 Replies
  • Posted By: Anonymous
  • July 20, 2006
  • 03:35 AM

We are desperate to find an answer to our little boys condition. He first presented with S.V.T. @ 6 weeks of age. He has unmanagable epilepsy (due to his collapse) & severe developmental delays which can not be explained.
Origionally doctors though his collapse was due to a metabolic fat disorder, this has not been able to be verified though testing.

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