Discussions By Condition: Other Conditions

marfan syndrome

Posted In: Other Conditions 2 Replies
  • Posted By: beyon3d
  • October 17, 2009
  • 06:03 PM

does this sound like it could be marfan syndrome
Symptoms http://kona.kontera.com/javascript/lib/imgs/grey_loader.gif
-
Legs longer than torso
6'2 165 pounds 15 years
about inch 4 1/4 inch middle finger so i guess long fingers
2 - 2 1/2 inch big toe dont know if thats long
Stretch marks http://kona.kontera.com/javascript/lib/imgs/grey_loader.gif
on mid back, butt, and a little on front of leg
arms like 2 inches longer than height
elbows only a little higher than hips

Other stuff-
I have small feet (size 11)
Can fit in the sleeves of long sleeve shirts that fit my torso
Not nearsighted
Play basketball very competitively and used to play football
Don't really tire easy, run and workout a lot.
Lift weights
i have pretty decent muscle definition
no PC / maybe a little PE but it would be extremely mild like extremely but i think its just my pecs
Have six pack
No knowledge of direct family having it.
wear size 34 length pants

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2 Replies:

  • does this sound like it could be marfan syndromeSymptoms http://kona.kontera.com/javascript/lib/imgs/grey_loader.gif-Legs longer than torso6'2 165 pounds 15 yearsabout inch 4 1/4 inch middle finger so i guess long fingers2 - 2 1/2 inch big toe dont know if thats longStretch marks http://kona.kontera.com/javascript/lib/imgs/grey_loader.gifon mid back, butt, and a little on front of legarms like 2 inches longer than heightelbows only a little higher than hips Other stuff- I have small feet (size 11)Can fit in the sleeves of long sleeve shirts that fit my torsoNot nearsighted Play basketball very competitively and used to play footballDon't really tire easy, run and workout a lot.Lift weightsi have pretty decent muscle definitionno PC / maybe a little PE but it would be extremely mild like extremely but i think its just my pecsHave six packNo knowledge of direct family having it.wear size 34 length pantsHi, my name is Kathryn Sims of memphis,tn i am 47 years of age. and I do have the Marfan's Syndrome disease. i have to be tested as well. and memphis will not test me all. have you been tested. you can call me and let's see what we can come up with. i cant work because of the pain i am having. are you having any side effects. let me know.
    candystrip32 1 Replies Flag this Response
  • Hi, my name is Kathryn Sims of memphis,tn i am 47 years of age. and I do have the Marfan's Syndrome disease. i have to be tested as well. and memphis will not test me all. have you been tested. you can call me and let's see what we can come up with. i cant work because of the pain i am having. are you having any side effects. let me know.I am in Memphis & my daughter & I were tested (& have) Marfan's at the UT Pediatrics Office. Her ortho doc referred us for testing due to her height & scoliosis. I have since had aortic repair. I have tried to find some type of support group in Memphis because my daughter is 6'3" @ 14 yrs old and weight 120lbs. It would be helpful to find other teenagers that she could relate to.
    Jeannie L. 1 Replies Flag this Response
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