Discussions By Condition: Other Conditions

Can you figure out what's wrong with me? -Urinary tract perhaps?

Posted In: Other Conditions 7 Replies
  • Posted By: Anonymous
  • August 9, 2006
  • 05:53 AM

For the past few years I have suffered from chronic Urinary Tract infections. There are a few things that make me wonder if they are actually something else. I am suffering from the symptoms more and more frequently. In the past month and a half I have had 2 full-blown "infections" and I'm starting to feel symptoms again.

I suspect that my case may be different because of the sudden onset and increased severity of the infections, and puzzling test results.

I am a 25 year old female

Ok, here are my symptoms
1) uncomfortable cramping, always on the left side. It initially feels like period cramps, and increases in severity

2) difficulty urinating without pain, except for some brief cramping after expelling the fluids when my bladder has not been emptied completely - pretty rare to feel pain though

3) frequent and urgent urination

4) a thick and smooth white discharge that leaks from my urethra. I am certain of this. It is not vaginal disharge, and I only get it when I experience the other symptoms

5) external vaginal irritation. No itching, just burning that usually is the first symptom, and is sometimes quite severe. It only lasts for the first day - no unusual discharge at all.

6) stabbing back pain in left kidney area,

which induces

a) nausea
b) a "poisoned" feeling throughout body
c) Often develop cold-like symptoms, with no fever - sore throat, congestion, and difficulty breathing - asthma

7) Do not respond to any anti-biotics tried, except for Macrobid, which seems to clear up the symptoms in about 2 days

8) Blood in urine

9) No infection ever found in urine when taken to lab - many tests have been conducted

RECENT SYMPTOMS OF CONCERN

1) The "infections" are often not going away for weeks, even when the anti-biotics are helping to prevent worsening symptoms

2) Increased fatigue during infections

3) Stomach pain - acidic feeling

4) Severe heartburn not improved by acid reflux/ulcer medications

5) Chronic but mild lower stomach cramping

6) So far 2 months of chronic diahorrea - seems to be worsened by certain foods, alcohol (for sure), and stress

7) As mentioned - increase in frequency of urinary/kidney symptoms to average at least 1 a month, when it was about 1 every 4-8 months previously

8) Tender areas on side of waist under ribs - feeling of pressure - spleen?

9) Frequent pulsing sensations in spleen and kidney area - again just on the left side

10) Very tender back in kidney locations ( mostly left side), feels swollen, and so tender I cannot side against them or lie on them - different from internal kidney symptoms. These are certainly external.

Beyond this you probably don't need to bother reading, but if it helps

-------------------------------------------------------------------

Chronic and most likely unrelated symptoms

a) Frequent yeast infections as of age 3 at the latest - probably younger

b) Frequent bladder infections starting at age 3 at the latest, which ended around age 8

c) slight heart murmur

d) difficulty healing - including months of necrosis treatment following surgery, and required scar revision - scar easily, wounds that take far too long to heal or seem to get worse rather than heal

e) Re-occuring rash, mostly on trunk, that the dermatologist didn't recognise - circular rings of little red bumps, do not hurt or itch at all, slightly dry and raised, slightly paler in the center, very small to the largest, - the size of a quarter. At one point it covered most of my body like chicken pox, and stayed with me for about months before fading - no allergy connections found

Mental

3) Life-long major depression/extreme insecurity, seriousness, occational paranoia, distractibility/dreaminess, hallucinations (possibly)

4) Very very poor memory of life - described as amnesia by psychologists

5) Very poor ability to retain information - will often forget speaking/or what was said minutes before, and even worse in the long term

6) chronic migraines

7) abnormal EEG showing unusual "epileptic" discharges in 2 EEGs, but not in 2 others - results on and off - EEG taken to test for explanations for memory loss/confusion/ and eyes rolling back into head very frequently

8) Severe bipolar symptoms beginning at age 20 - including severe psychosis - which lasted for about 3 months at its worst, and has tapered off but not gone away

9) A slowly developing stutter, and slowly degrading speech, speech recognition, and reading/writing ability. Slowly losing grasp of punctuation, and forgetting common words or relying purely on common words- some times worse than others

10) worsening "mental fogginess" and headaches

11) no abnormalities shown on MRI 10 years ago

12) chronic anxiety - life-long

---------------------------------------

So yeah. That's a lot of symptoms. I doubt that the mental symptoms are related, but hey, you never know.

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7 Replies:

  • Hey, I have almost everyone of those symptoms you described and i've only had these symptoms for about 6 days now, its my first time to have a UTI and I was wondering if there was anything you could tell me? Thanks so much.
    Anonymous 42789 Replies
    • September 20, 2006
    • 02:40 AM
    • 0
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  • I have had many of the symptoms, but not all. For the frequent yeast infections... I had many of these growing up and found later through many tests found each time there was no yeast infection, only the symptoms... I have found that using scott brand toilet paper or a hypo-allergenic toilet paper has completely eliminated the yeast infection symptoms (for at least 8yrs.) I have been laughed out of doctor offices and don't talk about it much. I have found 2 other women that seen me carrying toilet paper with me to the rest room and mentioned they had the same problems, and had to find the same way of fixing the problem through the same trial and error that I went through. Pads and Tampons affect this also... Also, I have a niece that I can't convince anyone, that she may have the same problem with her diaper. My niece has had a boil on her bottom that has re-occured and caused some issue with CPS until they found that the boil was drained by a doctor just prior to their inquiry, and it was dropped.
    Anonymous 42789 Replies
    • February 11, 2007
    • 06:51 PM
    • 0
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  • The frequent yeast infections stopped for me when I started using Scott brand toilet paper or Hypo-Allergenic toilet paper... Pads and Tampons have caused the same problem for me with the yeast infections... Every time I was tested there was no infection, just the symptoms... I believe my niece has the same problem with her diaper causing blisters on the **m though frequently changed. Some white toilet papers with no die's or perfumes still cause the problem with me.I have been laughed out of doctors offices when I have told them I was allergic to something in the toilet paper, so I don't talk about it much. I have run into two other people who found they had the same trial and error to correct the problem.
    Anonymous 42789 Replies
    • February 11, 2007
    • 06:58 PM
    • 0
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  • For the past few years I have suffered from chronic Urinary Tract infections. There are a few things that make me wonder if they are actually something else. I am suffering from the symptoms more and more frequently. In the past month and a half I have had 2 full-blown "infections" and I'm starting to feel symptoms again.I suspect that my case may be different because of the sudden onset and increased severity of the infections, and puzzling test results.I am a 25 year old femaleOk, here are my symptoms 1) uncomfortable cramping, always on the left side. It initially feels like period cramps, and increases in severity2) difficulty urinating without pain, except for some brief cramping after expelling the fluids when my bladder has not been emptied completely - pretty rare to feel pain though3) frequent and urgent urination4) a thick and smooth white discharge that leaks from my urethra. I am certain of this. It is not vaginal disharge, and I only get it when I experience the other symptoms5) external vaginal irritation. No itching, just burning that usually is the first symptom, and is sometimes quite severe. It only lasts for the first day - no unusual discharge at all.6) stabbing back pain in left kidney area, which induces a) nausea b) a "poisoned" feeling throughout bodyc) Often develop cold-like symptoms, with no fever - sore throat, congestion, and difficulty breathing - asthma7) Do not respond to any anti-biotics tried, except for Macrobid, which seems to clear up the symptoms in about 2 days8) Blood in urine9) No infection ever found in urine when taken to lab - many tests have been conductedRECENT SYMPTOMS OF CONCERN1) The "infections" are often not going away for weeks, even when the anti-biotics are helping to prevent worsening symptoms2) Increased fatigue during infections3) Stomach pain - acidic feeling4) Severe heartburn not improved by acid reflux/ulcer medications5) Chronic but mild lower stomach cramping6) So far 2 months of chronic diahorrea - seems to be worsened by certain foods, alcohol (for sure), and stress7) As mentioned - increase in frequency of urinary/kidney symptoms to average at least 1 a month, when it was about 1 every 4-8 months previously8) Tender areas on side of waist under ribs - feeling of pressure - spleen?9) Frequent pulsing sensations in spleen and kidney area - again just on the left side10) Very tender back in kidney locations ( mostly left side), feels swollen, and so tender I cannot side against them or lie on them - different from internal kidney symptoms. These are certainly external.Beyond this you probably don't need to bother reading, but if it helps-------------------------------------------------------------------Chronic and most likely unrelated symptomsa) Frequent yeast infections as of age 3 at the latest - probably youngerb) Frequent bladder infections starting at age 3 at the latest, which ended around age 8c) slight heart murmurd) difficulty healing - including months of necrosis treatment following surgery, and required scar revision - scar easily, wounds that take far too long to heal or seem to get worse rather than heale) Re-occuring rash, mostly on trunk, that the dermatologist didn't recognise - circular rings of little red bumps, do not hurt or itch at all, slightly dry and raised, slightly paler in the center, very small to the largest, - the size of a quarter. At one point it covered most of my body like chicken pox, and stayed with me for about months before fading - no allergy connections foundMental3) Life-long major depression/extreme insecurity, seriousness, occational paranoia, distractibility/dreaminess, hallucinations (possibly)4) Very very poor memory of life - described as amnesia by psychologists5) Very poor ability to retain information - will often forget speaking/or what was said minutes before, and even worse in the long term6) chronic migraines7) abnormal EEG showing unusual "epileptic" discharges in 2 EEGs, but not in 2 others - results on and off - EEG taken to test for explanations for memory loss/confusion/ and eyes rolling back into head very frequently8) Severe bipolar symptoms beginning at age 20 - including severe psychosis - which lasted for about 3 months at its worst, and has tapered off but not gone away 9) A slowly developing stutter, and slowly degrading speech, speech recognition, and reading/writing ability. Slowly losing grasp of punctuation, and forgetting common words or relying purely on common words- some times worse than others10) worsening "mental fogginess" and headaches11) no abnormalities shown on MRI 10 years ago12) chronic anxiety - life-long---------------------------------------So yeah. That's a lot of symptoms. I doubt that the mental symptoms are related, but hey, you never know.-------Hello-I had most of your symptoms. I have been responding to alternative medicine and making great progress.To make a long story short, you most likely have a toxic overload. Some of the nutrients that you supply your body with, get rejected by a confused/overwhelmed body. Also toxins get built up in your system causing inflammation and making your body work overtime.It would take me hours to explain everything I have done to get better, since I was in such bad shape- I kept confusing words and feeling doom.You can read some of my comments here:http://forums.wrongdiagnosis.com/showthread.php?t=7286Please look for a Doctor of Oriental Medicine, a Licensed Acupuncturist preferably a person who studied advance NAET ( Nambudripad's Allergy Elimination Techniques).Even if you don't think you have allergies, you might have intolerance to pesticides, mercury, other poisons in the environment, food supply, and medicines.NAET can evaluate you quickly, easily, and safely. It does not involve invasive tests- and it starts treating you right away.I wish you the best.
    Anonymous 42789 Replies
    • February 11, 2007
    • 07:36 PM
    • 0
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  • If the circular rash looks like a bullseye, that is lyme disease (I hate that word)....I believe that if you locate the cause of the rash and treat it, then you may experience some relief. Get bloodwork for a variety of rashes including herpes 2 or scrap it and have it analyzed. I also feel that you have a few conditions all together, making you miserable. Are you sexually active? Although you report trouble since childhood, it certainly sounds like a persistent STD that you may be getting false negative tests on. Ask the doctor to check with a different test (chlamydia)...your boyfriend would need to be treated, too, or you would pass it back and forth. I doubt if the urinary tract infection will heal until the std is determined...get a pap, too, see if that turns up anything. I think it is going up your system and now getting into your kidneys so I certainly hope they can track down what germ it is for your sake.
    Monsterlove 2921 Replies
    • February 12, 2008
    • 03:11 AM
    • 0
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  • I know this may seem stupid but i personally went through a lot of misery before i discovered that i was 1) Lactose intolerant2) Allergic to caffeineRegarding #1: I had stomach acid burning all the time and nothing helped (not even Previcid and Protonix). What was happening was any dairy or whey i ate wasn't getting digested properly and would cause my stomach to keep pouring acid out for many hours past eating.And before you say that you don't eat any dairy CHECK THE INGREDIENTS...they seem to put dairy and whey into EVERYTHING (it must be cheap or something). So all you made need is Lactase enzyme EVERY time you eat dairy (the best place to get it is at a vitamin store).If you find you are lactose intolerant just be careful about what you eat, like when you go out.Say you order eggs or an omelet you may think your ok but don't forget about the BUTTER on the toast.Also, this can easily cause lots of diarrhea.Regarding #2: It's not very common to become allergic to caffeine but it happens. The best way for you to learn about it is to Google it. Almost all of your mental symptoms can be related to this allergy. It's easy to test, just stop all caffeine for about 2 months and see how you feel. Beware though, if you consume a large amount now and stop cold be prepared for the headache of your life (mine lasted 3 days straight, yikes!)What i've discovered about health in the last 2 years is that our bodies are smart and tough and designed to heal themselves, but given the sheer number of external forces we throw at them on a daily basis it's amazing were alive at all.What i'm saying is try to eliminate external things one by one before you think about internal things being wrong.Also, that discharge you have sure sounds like an std like chlamydia or gonorrhea. I'd have that checked out pronto. With your left flank pain it may be working it's way up to your kidney.
    kjohn034 1 Replies Flag this Response
  • Hi...the original poster posted so long ago, but for anyone else with similar symptoms, another thing to check is gall or kidney stones. My mother had a gall stone stuck in her bladder for a LONG time...and was getting treated for UTI's all the time. Once they found it, and blasted it with ultrasound, the UTI's stopped. I also know someone that had a toilet paper allergy. I don't know why a doctor would find that so unusual...people can be allergic to anything!
    Anonymous 42789 Replies
    • January 26, 2009
    • 04:02 PM
    • 0
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