Discussions By Condition: Nerve conditions

young, undiagnosed, and frustrated

Posted In: Nerve conditions 4 Replies
  • Posted By: Anonymous
  • July 16, 2007
  • 01:45 AM

Hi All,

As with most of you, I have a slurry of odd neurological symptoms but no answers. If you wouldn't mind looking over my list of symptoms, I'd certainly appreciate any input that you might have. I have an appointment with a new neurologist in 2 days. I'm pretty jaded about doctors, but I won't get into that right now. Here are my symptoms:

1) Full-body spasms, or myoclonus. This began suddenly a few years ago, lasted for several months, and then subsided. Magnesium supplements were very helpful.

2) Shortness of breath. Also lasted for a few months after initial onset, went away, but I still have problems with it occasionally.

3) Tremor. In right wrist, and occasionally head bobs, too.

4) Difficulty walking. This happened in October, lasted 4 days and then went away.

5) Slurred speech. Only lasted 2-3 days.

6) Tingling in left hand and forearm

In short, I'm concerned about (severe) neurological symptoms that show up for a while, subside, and then come back after months, or even years. I am symptom-free 90% of the time. My experience so far has been that if I'm not exhibiting a particular symptom the exact moment I walk into a neurologist's office, they say "well, you look fine now." or insinuate that I'm making things up. I'm only 22, so I'm concerned about how these relapsing symptoms will affect my future.

Also, any tests you think I should push for?

Thanks so much!

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4 Replies:

  • Push for an MRI of the head and body with contrast. Don't go for an Open MRI facility since the enclosed kind can show more. Good luck.
    Lisa D. 1 Replies Flag this Response
  • Thanks for the advice--I'm getting an MRI early next week, so we'll see how that goes. Take care :)
    Anonymous 42789 Replies Flag this Response
  • Get tested for Lyme, Gliadin (gluten) antibodies and maybe vitamin B1, B12. I think they can all cause a lot of weird symptoms. Bear
    Anonymous 42789 Replies
    • January 18, 2008
    • 02:52 AM
    • 0
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  • You might also want to ask to have your thyroid antibodies checked, even if your hormones are nromal. You might have hashimoto's encephalopathy, a rare complication of autoimmune thyroiditis.
    Anonymous 42789 Replies
    • January 21, 2008
    • 11:36 PM
    • 0
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