Discussions By Condition: Nerve conditions

What to do? Doctors do not know what to do

Posted In: Nerve conditions 1 Replies
  • Posted By: serv01
  • July 18, 2012
  • 05:50 PM


First, my english is not so good so sorry for that.

My name is Allesandro and I live in Slovenia (Europe). 27 years old with epileptic, as far we know.

1. In the middle of walk I am strarting to "freezing". I can not move (or few steps top), can not speak, but I'm conscious.
2. I yust fell down vertically, not sideways. This time is blank, like I fall a "sleep", not conscious. This comes sometimes after freezing and I "wake up" few moments after hitting the flor.
3. This symptom is similar as the second (2.), but here I am conscious and barely sensing the sourundings, loose muscles, like my neurologist says, that I am in "sleep" mode. After that I can remember only crumbs of everything. Duration of few to ?? seconds.
4. Hard shaking of the head in all dirrections, faster breathing, "changing" color og the face, very tense neck muscles. At the end shaking it stops momentarily. Sometimes at the end head punches back hard. Duration of few to about 10 seconds.
5. Deeper and deeper breathing, changing face color. Unknown duration.
6. Sometimes is paralyzed all bellow the neck (not moveable). Duration is from few seconds to one hour or even more.
7. Paralyzed only legs (not moveable). Duration is from few seconds to one hour or even more.
8. Always sleepy and tired.
9. Not so good memory.

In Belgrade Serbia I was diagnosed with: Epilepsia G40 Hypertension arterialis Depresio. I went to few neurologists, but they do not know what is wrong. Now I am stationared at one. I went to few psychiatrists claiming, that my psyhic can not be source for most problems. In few months it will be 5 years of hardest problems. My fizical movements are very limited and weather sensitive. At summer, I can fizically move (bicycle, work arround the house, ...) much more than in winter (some play with a dog an that is it). Either way, even in summer, manny days are verry limited.

Epitologist sended me to one day of EEG, video surveillance, provoke an seizures, ... but waiting period is a one year, few months more or less. I am using pills Tegretol CR400 4pills/day and Tegretol 200 1pill/day. Tegretol stops the strong Generalized seizures.

This is base of my story.

Bye, Allesandro.

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  • Mild but similar symptoms my 9 yr old had. I skipped medication and took the advice of the medical wellness doctor I work for.You may want to consider micronutrient testing. (Spectracell) and food allergy testing tooTurns out our daughter had severe and rare vitamin deficiency's.Treated our 9yr old with an almost gluten free diet and the proper vitamins to replete her deficiencysShe is almost 100% better within 75 days or so.I don't if this will help you but I see healthy customized diets and vitamins help sick people all the time, it's truly amazing & it can't hurt you :)Good luck
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