Discussions By Condition: Nerve conditions

very scared

Posted In: Nerve conditions 2 Replies
  • Posted By: rosekay
  • August 20, 2007
  • 11:56 AM

Hi, this is my first post here. I'm really scared as a neurologist found ankle clonus in my left leg and has arranged an urgent nerve/muscle test. Just been looking on internet (stupid, I know) and it says it is always significant and talks about things like MND and multiple sclerosis and lesions.....terrified now. Test is Sep 5th so still plenty of worry time to go. Can anyone help me calm down?? Really upset about it all.

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  • Hi Rose. I'm new to this site, and it's good to know that I'm not the only one going through a rough time right now. I have been having problems with my back and neck for about six or seven months now. I was told that I have ankle clonus and hyper-reflexive legs. I've had a couple of MRIs, and I have a slight spinal cord compression in my neck. I have been having the following symptoms:Tingling/Numbness/Weakness in my legs and armsBurning pain in my neck and down to the bottom of my shoulder bladesFeel like my limbs are not responding to my brain telling them to moveWhat are your symptoms?Now, with regards to you being scared. I was very scared when I was told about the hyper-reflexive legs and the clonus, especially when I looked up what those findings could mean (spinal cord compression or MS). I took a look at the treatment plans and prognosis for each problem, and each one is definitely treatable, and not a death sentence. I happen to know a few people who've had MS for years, and they are leading very normal lives. I know it's scary, but you need to remember that it takes a little time to diagnose some of these problems, and that you want to be sure about what's wrong, and not get treated for something you don't have. I have found that talking about your fears with a family member or even your doctors can help relax you. I have found that worrying about what's wrong, and obsessing about it only makes the pain worse. I hope this helps.
    Anonymous 42789 Replies
    • August 26, 2007
    • 07:29 AM
    • 0
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  • Thank you very much for your reply to my post, it is really helpful. I saw the neuro first about muscle twitches - general, all over really but not continuous. I think I said he wasn't worried about that. This clonus thing really freaked me, because of course I googled it and it sounded like it meant something horrific - tumours, MS, MND.... I really was panicked. For a long time I have had trouble in the back of my neck - had an xray a few years ago which didn't show anything, physio didn't help. On and off aching and an actual pain sometimes to the left of my upper spine. Occasionally I feel sort of clumsy in my hands, but only very mildly - so mildly that I could be imagining it I guess...but you probably know how you dwell on things and they feel worse and worse? I also get a feeling like I'm just off-balance sometimes, which is weird when walking. I'm actually walking straight, but don't feel like I am. Not all the time, but again, I dwell on it....... And flashes of, I'm assuming, adrenaline - like the feeling you get when you get a sudden shock.....again, fleeting, but again, I worry. That wouldn't help, I suppose!I think it's often really difficult to know which symptoms we should worry about and which really don't matter, and it all builds up and up and you feel worse and worse...or is it just me?It's really helped to read your message, knowing you get some of the same symptoms. I'd like to hear from you again - perhaps we can cheer each other up and be a bit of support?All the best, and thanks againrosekay :)
    rosekay 1 Replies
    • August 27, 2007
    • 08:44 PM
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