I had my first seizure in October 2008, while I was with some friends, and another one while I was in the hospital. (However before I had my seizure I felt the entire right side of my body go numb, so much so that I wasn't even able to move my leg, the feeling went away after about 10 seconds) They ended up running a bunch of test on me and couldn't find out what was wrong with me so they ended up sending me home. About two weeks later I had another seizure while at my ex-boyfriends house, and another one while in the ambulance. The hospital ran more test and the EEG this time showed some abnormality. They put me on Dilantan and I didn't have a seizure so at this time they release me. Until approximately another two weeks later I ended up having another seizure, at home, and another one while in the hospital. It was at this time that they took me off the Dilantan and put me on Keppra and Topamax and Folic Acid.
Now I have been seizure free for about, a month and a half and when I was in the hospital I did have some motor skills, with my right leg, and when I got out of the hospital I had trouble walking so much so that I had to use a cane to walk around. My leg has gotten better but I still find it hard to walk properly, and muscle soreness.
I do have Neurofibromitos type 1, and have told my multiple-neurologist this and all of them just keep seeming to brush me off, I was wondering if anyone else had trouble walking after having mutiple seizures even after they were under control.
The doctors still don't know why I'm having seizures, they just put me on 1500mg of keppra, 100mg of topamax and 1mg of folic acid.
anyone with any advice that I could let my mutiple doctors know, something that they could have bypassed would be great.
It sucks not being able to walk more then a block!
I have been told its not related to my NF.
I know its not todd's paralysis.
I have had 2 lumbar punctured that have showed nothing
MRI that showed nothing
Multiple blood work that was inconclusive
I cant tell you how many times I've peed in a cup in 2008.
please, anyone with any insight!
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