Discussions By Condition: Nerve conditions

Umm...epilepsy? tumor? or some other disease?

Posted In: Nerve conditions 5 Replies
  • Posted By: inquiring
  • October 28, 2006
  • 03:38 AM

:confused: I have just a few questions... ok, maybe a little more than a few, but I will try to keep this short. i am in my early twenties & have had some symptoms for quite a while. I have had black outs (some I could withstand, others I would find myself on the floor) for as long as I can remember. I have also always had headaches, yet as I get older it just seems like extremely sharp pains shooting through certain areas in my head. I seem to be extremely forgetful (for instance... forgetting that a ditch is called a ditch). At times I just drop things. I hear buzzing in my ears at random times. My fingertips & toes seem to go slightly numb. I started having fainting spells about a year ago, but I would never stay out too long. I am always nautsia (ok, I don't know how to spell that..lol) and I seem to always be exhausted. I had my first seisure a few days ago & then my left arm & leg went paralyzed for about...well, I am not sure how long, but I can move them now ;)
I have had an EEG & it said there were slight abnormalties, but a CT scan came out normal. Does anybody have any clue what might be going on?

well, I had to go in for another EEG today! I hate the way I feel after one of those! Anyway, I have to get an MRI on the 8th... 7 days & counting. I am a little nervous because I am... well... I have this problem with tiny spaces ;)!
Ummm.... the doctor has now put me on "epilepsy" meds for "seizure activity" & said it would be safer... even though there are side effects... until he can figure out what is wrong w/ me. I told him all my symptoms, including hallucinations, and he thought all the other doctors I saw were crazy for not trying to see what was really wrong! He said I should have went to a neurologist a long time ago... I explained that I would have if I had insurance then! :eek:

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5 Replies:

  • I have just a few questions... ok, maybe a little more than a few, but I will try to keep this short. i am in my early twenties & have had some symptoms for quite a while. I have had black outs (some I could withstand, others I would find myself on the floor) for as long as I can remember. I have also always had headaches, yet as I get older it just seems like extremely sharp pains shooting through certain areas in my head. I seem to be extremely forgetful (for instance... forgetting that a ditch is called a ditch). At times I just drop things. I hear buzzing in my ears at random times. My fingertips & toes seem to go slightly numb. I started having fainting spells about a year ago, but I would never stay out too long. I am always nautsia (ok, I don't know how to spell that..lol) and I seem to always be exhausted. I had my first seisure a few days ago & then my left arm & leg went paralyzed for about...well, I am not sure how long, but I can move them now ;)I have had an EEG & it said there were slight abnormalties, but a CT scan came out normal. Does anybody have any clue what might be going on? I'm no doctor, but it sounds like symptoms of a brain tumor! Or a tumor pressing on your spinal cord somewhere. Or possibly Epilepsy.
    kaitka 1 Replies
    • October 30, 2006
    • 00:13 AM
    • 0
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  • Ask whoever you're seeing about the possibility of your having an AVM (Arteriovenous Malformation). They're dangerous because they do one of three things: (1) Absolutely nothing, in which case you never know you have it; (2) The sypmtoms you're describing; or (3) Hemorrhage catastrophically, as mine did.
    Anonymous 42789 Replies Flag this Response
  • please ask to be tested for encaphalitis, ie swelling in the brain, shows up on eeg as inflammation or docs may called it lesions of the brain
    Anonymous 42789 Replies Flag this Response
  • Look into TIA (transient ischemic attack) or mini-stroke. It can be caused by hyperviscosity (thick blood) or Polycythemia (escess red blood cells) I am 27 and looking for a cure for the same problem. Currently on self-diagnosed aspirin therapy.
    Anonymous 42789 Replies Flag this Response
  • I don't wish to alarm anyone, but a couple of responses on this thread make me post. There is a rare genetic disease called Cadasil that most doctors in the United States do not know about. It is often misdiagnosed as MS early on and treated with medications that I feel could be harmful to those who really don't have MS. Cadasil causes mild strokes or TIA's. It can manifest with migraines that can do brain damage, numbness, gait issues, shooting pains in the head and on and on. It can even blind. If you have this disease and have a mild stroke and go to the hospital and are given stroke medications, you can have a bleed! That is what took my mother out. Stroke medications will give you a fifty fifty chance of being worse off, so I don't consider them worth the risk. BUT... because you might have a mild stroke the hospital will do what they think is best and give you stroke medications right away. This is dangerous for Cadasil patients, so knowing what is really going on is extremely important! A brain MRI, blood test or DNA testing can prove Cadasil. If you have a brain MRI, most will not know how to read Cadasil on it! But if you have swelling or white spots and the other symptoms or have a family history of stroke, please consider Cadasil. Dipity
    Dipity 2 Replies Flag this Response
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