Discussions By Condition: Nerve conditions

Treated for Guillain Barre in February of 2013 with IVIG and I still have severe nerve damage?

Posted In: Nerve conditions 0 Replies
  • Posted By: Anonymous
  • November 20, 2014
  • 04:23 PM

I need help finding how to feel better? I was treated for Guillian Barre Syndrome in February of 2013 and I still have chronic fatigue, electrical shock and severe nerve damage. Most days on a scale of 1-10. I feel about a 4. I am a 48 year old male and am disabled now. I do have in addition spinal spondylitis and three herniated cervical disk. Two of them are pressing against the spinal sack. My Nero doctor says it's not causing my fatigue and nerve problems that a virus similar to, if not Guillian Barre left me with these disabilities? Many people with this illness get much better but I am still pretty messed up! Is there anyone else like me? Some doctors on my journey to find answers wanted to indicate that my symptoms were in my head thinking I had lost my mind, but that's not true! I went to Mayo in January of 2014 and my blood work was ok, and my nerve conduction was restored. However, these symptoms are still tormenting me? I take Lyrica and Alprazolam to help me, but sure doesn't get me back to even half of where I was before this Autoimmune disease hit me. Have I been misdiagnosed? Am I a small percentage that has this severe left over damage? Can I regenerate my nerve damage? I did travel to Jamaica and to Nicaragua right before this illness hit me! I also had extreme stress before this illness hit me! I was told to go to Vanderbuilt instead of Mayo Florida, I guess I should have listened. Mayo did find, grade 1 heart failure, B-12 issues, small fiber neuropathy, and chronic fatigue, so they did help. Please help? Richard in Arkansas, heavenboundminister@yahoo.com

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