Discussions By Condition: Nerve conditions

Told I might have rds, but the symptoms don't fit-toe trauma injury not healing

Posted In: Nerve conditions 4 Replies
  • Posted By: aumakua
  • February 15, 2009
  • 02:32 AM

Two years ago I jammed my little toe on a wooden chair leg. The pain was extreme. The top of my foot turned black with bruising/hemotoma, there was a lot of swelling that went up to my knee at times, but especially collected in my ankle. I couldn't put any weight on it nor could I even let it hang below waist level because the pressure of the blood going to it hurt so badly. After 9 months it healed or at least I thought it did, all pain and swelling went away, I could walk normally and for long distances again...even jump around. I want to note that I did get several x-rays and all were negative for any bone fractures. I also got a negative result for blood clot in the leg.

Well a month later, getting into the tub, bam I hit it again....and the pain all came back, as did the swelling. Now it doesn't hurt to touch it...it's not a skin sensitivity thing...it's a deep pain in the joint area that if I stay off of it stops hurting, but if I put weight on it or move it around much there's a hot burning pain that feels like nerves.

I did get a mri which showed synovial fluid leakage around the joint. One dr. said it was significant amount one said the opposite. They seemed to think I had capsulitus, but that should have healed after 6-8 weeks they said.

Ok now it's been 2 years since the initial trauma, and I can wear flat soft shoes, but still limp and can't put weight on my foot for long before I feel that intense pain again, sometimes with a delayed reaction. It does seem like the duration of pain, if I don't overdo it last less time. But when I do walk/hobble a bit too much it can last a week. It's so depressing.

A few drs. said rds but I'm not convinced. My foot isn't cold and the skin is not sensitive and the pain is not constant, though the problem seems to be. I wonder am I still healing from the injury or has it progressed to something else?

Please help....I miss walking, dancing, shopping for my own groceries.

Any insight would be greatly appreciated. Thank you.

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4 Replies:

  • Sorry, can't figure out how to edit my post...For clarity, rds or rsds is reflexive sympathetic dystrophy syndrome.
    aumakua 4 Replies
    • February 15, 2009
    • 08:57 AM
    • 0
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  • It could possibly be RSD, not everyone get all the symptoms, or get different ones. I have full body RSD it started 5 years ago in the foot and stayed there for 4 years then spread. Your foot actually souds how mine felt before it started spreading. Mine too hurt to put pressure on it and would swell after 6 hours on my feet. I didnt have any temp changes at that time, but it was extreamly sensitive to water. At this time I didnt know what was wrong as I just took all my sysmptoms coming from my surgery it wasnt until 08 I was diagnosed with RSD.If you want to rule it out I would try to find a pain specialist or anesthesiologist that knows a lot about RSD, just to rule it out.I hope you find your answeres as I know how stressful it can be to go so long in pain without answer. Niki1
    nikiski1 35 Replies
    • February 15, 2009
    • 01:01 PM
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  • Hi Niki,What is your understanding of rds? Did you have an injury to your foot too?
    aumakua 4 Replies
    • February 16, 2009
    • 06:05 AM
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  • What do you mean understanding of RSD? I know most everything about this crazy disease, and like my doctor says there is absalutly no rule book, this disease is never the same in people. There are some doctors that believe it follows a certain set of symptoms at a certain time, but thats just not true, some only get a few symptoms and some get them all, some the RSD spreads ands some it doesnt. Like most diseases it has one pattern but RSD has many, just as if you were to talk to 3 with RSD at the same time, not one has the same symptoms except maybe the pain and no one is taking the same medication for help cause what works for some doesnt work for others. My RSD started after foot surgery to correct a problem I was born with, sadly it wasnt caught by my doctor he just thought it ran in the famly, so he ended up doing 2 more un-needed surgeries to try and correct the swelling/pain problem and the last one made it spread. If he had caught it the first surgery it may have never of spread past the foot and even may of been able to put it in to remission. Finding doctors to diagnose was my hardest problem, I went through 54 doctors in 3 months looking for a diagnosis for why I was in so much pain, and since have seen 50 some doctors for treatment. Like I said the first 4 years though were a lot like how your describing yours, pain, swelling and I couldnt put it in water for nothing but I didnt think something was wrong but that my surgery was still healing. I have friends with RSD that just sprained an ankle, fell on a wrist or turned a neck the wrong way its amazing how easy this disease can be contracted. One thing is if you do think you have RSD, dont put any ice on it until you have it ruled out as that is the worst thing to do as it will help the RSD to spread. If it is RSD you also need to start treatment as soon as possible as the longer you wait the more likely it will spread. If you have any questions at all please dont hesitate to ask. Hope you find your answer! Niki1
    nikiski1 35 Replies
    • February 16, 2009
    • 00:28 PM
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