My 2.5 year old son was able to walk (developed normally) until just before his 2nd birthday at which time he began to limp and then would not walk at all. We took him to the hospital where he had an ultrasound and was diagnosed with irritable hip. We were advised to rest him. After a few weeks he was able to walk again. Within a month he stopped walking again and has not been able to walk since.
His right leg was in permament spasm from the hip to the toes meaning he was also not able to balance even when sitting.
He has had an MRI scan and is having physiotherapy and hydrotherapy.
The MRI scan results just came back, his brain and spine are completely normal.
About 3 weeks before his MRI scan, he had a massive seizure in his right leg which lasted for around 2 hours and was treated at A&E with diazepam. Since the seizure, his leg is no longer convulsed/spasmed and is now in the same state as his left leg, ie. pretty much normal.
But the issues with the balance and the walking (ie. he cant balance when sitting, he cannot stand and cannot walk) still remain.
What makes matters worse is that he has RAS (reflexive anoxic syndrome) where he holds his breath until he passes out when he is distressed. This means that putting him down, in the bath, or trying any of his physio exercises stimulates his RAS and he passes out.
So we are back to square one. Our son still cant walk, and we have no idea why.
Has anyone else experienced this or similar?
We have been assured that the RAS and the walking are not connected.
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