For the last 10 years, I have had a multitude of symptoms that have no explanation. I have blackouts where my vision fades to black and my limbs start to go numb. I loose all muscle control. If it is bad enough my face, tongue and scalp will go numb. Longest one was around 20 to 30 seconds. I have never lost conciousness during these. Sometimes I can get them by standing and even sitting and stretching in a chair BUT I can't duplicate them on demand no matter how hard I try. I would love to say that it's simple syncope but it just doesn't fit. I seem to get them randomly and I do sometimes smell strange things around the time of me having them. I have not been able to find any particular trigger for them. I recently found a description of an Atonic Seuizure and got goosebumps because its exactly what happens to me.Long story short I also have all of the below symptoms.
-Total body weakness such as effort to walk at time or hold arms up, feel like could buckle at anytime.
-Clumsiness, drop things frequently, trip and fall a lot
-Achy joints that come and go all over body
-upper thoracic nerve and muscle pain
-shooting pains down arms, burning. Immobilizing
-sensations of hot water down legs
-sensations of cold water drops hitting skin
-cognitive disfunction such as transposition of letters and numbers, forgetfulness mid sentence, brain fog, trying to say a certain word it's like my mouth gets stuck and I can't make myself talk.
-difficulty writing due to pain and trouble telling my hand to grip pen.
-mood swings, anxiety, recently panic attacks
-frequent waking at night
-Zoning out, not sure if it's just me or something more significant
-I think there are probably some I missed but those are the main ones
My doctor has been less than proactive. And getting her to do tests is like pulling teeth. Lately I've been putting my foot down though. Had enough.
Several MRI-all looked normal
EGG & EKG - normal
Lyme test >.91
Doctor thinks Fibromyalgia but I'm skeptical.
Any advise or anything would be great.
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