Discussions By Condition: Nerve conditions

Symptoms:drop attacks, numbness,foggy vision,Strange smells,nerve pain, trouble controlling nerves

Posted In: Nerve conditions 6 Replies
  • Posted By: Singer6980
  • June 8, 2014
  • 03:09 AM

For the last 10 years, I have had a multitude of symptoms that have no explanation. I have blackouts where my vision fades to black and my limbs start to go numb. I loose all muscle control. If it is bad enough my face, tongue and scalp will go numb. Longest one was around 20 to 30 seconds. I have never lost conciousness during these. Sometimes I can get them by standing and even sitting and stretching in a chair BUT I can't duplicate them on demand no matter how hard I try. I would love to say that it's simple syncope but it just doesn't fit. I seem to get them randomly and I do sometimes smell strange things around the time of me having them. I have not been able to find any particular trigger for them. I recently found a description of an Atonic Seuizure and got goosebumps because its exactly what happens to me.Long story short I also have all of the below symptoms.

-Total body weakness such as effort to walk at time or hold arms up, feel like could buckle at anytime.
-Clumsiness, drop things frequently, trip and fall a lot
-Achy joints that come and go all over body
-upper thoracic nerve and muscle pain
-shooting pains down arms, burning. Immobilizing
-sensations of hot water down legs
-sensations of cold water drops hitting skin
-cognitive disfunction such as transposition of letters and numbers, forgetfulness mid sentence, brain fog, trying to say a certain word it's like my mouth gets stuck and I can't make myself talk.
-difficulty writing due to pain and trouble telling my hand to grip pen.
-mood swings, anxiety, recently panic attacks
-night sweats
-frequent waking at night
-Fatigue
-Zoning out, not sure if it's just me or something more significant
-tremors
-I think there are probably some I missed but those are the main ones

My doctor has been less than proactive. And getting her to do tests is like pulling teeth. Lately I've been putting my foot down though. Had enough.

Several MRI-all looked normal
EGG & EKG - normal
Lyme test >.91

Doctor thinks Fibromyalgia but I'm skeptical.

Any advise or anything would be great.





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6 Replies:

  • So sorry to hear you are having all these symptoms. Actually, I have a lot of the same symptoms, too. I have lupus but am now being tested for Multiple Sclerosis. Have your Dr. do an mri, if you can afford it. This will help in diagnosing your many symptoms. Good luck and you're in my prayers.
    Anonymous 1 Replies Flag this Response
  • or could be a combination of symptoms. achy joints - I get that with hay fever season. It's a rare sign of allergies.
    Tremors, fainting, brain fog, impaired cognitivity, frequent waking at night, nerve pain, fatigue, zoning out. all signs of high and low blood sugars. You might have hypoglycemia or be pre-hyperglycemic. Ask your doctor for the A1C blood test.
    -mid-sentence forgetfulness, my mother in law drove me crazy with this. After many doctors extreme hypoglycemia non-thyroid diagnosis.
    SilverSong 1 Replies
    • August 14, 2014
    • 07:19 AM
    • 0
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  • Your Lyme test result is abnormal. Your doctor probably isn't interested in treating Lyme disease or doesn't know much about it. Many people think Lyme disease is only aquired from a tick bite. Wrong. Lyme disease can be transmitted to humans from borrelia infected ticks, fleas, mosquitoes, sand flies, and spiders. Researchers are still learning about Lyme disease/Borrelia and medical practitioners are hesitant to treat it.
    I'm so very sorry you're suffering so much.
    Hopeful4000 1 Replies
    • September 14, 2014
    • 06:01 AM
    • 0
    Flag this Response
  • Your Lyme test result is abnormal. Your doctor probably isn't interested in treating Lyme disease or doesn't know much about it. Many people think Lyme disease is only aquired from a tick bite. Wrong. Lyme disease can be transmitted to humans from borrelia infected ticks, fleas, mosquitoes, sand flies, and spiders. Researchers are still learning about Lyme disease/Borrelia and medical practitioners are hesitant to treat it.
    I'm so very sorry you're suffering so much.
    Hopeful4000 1 Replies
    • September 14, 2014
    • 06:09 AM
    • 0
    Flag this Response
  • Lyme disease
    Anonymous 1 Replies Flag this Response
  • I have Fibromyalgia and experience most of the same symptoms. It took a while (couple of months) to get it diagnosed but once I had the diagnosis I could begin learning how to live with it. There is a blood test now they can do for the diagnosis but it's fairly new so not a lot of doctors do it. Usually a diagnosis is made by testing for all other conditions and if all tests come back negative you should be referred to a rheumatologist that does pressure point tests. Of you experience pain during these tests a diagnosis of Fibromyalgia is then made.Reading other people's experiences online really made it clear to me that it's exactly what was wrong with me. There's a ton of support and suggestions out there. Some work for some people and some don't but finding what works for you goes a long way in learning how to adjust your life so you can HAVE a life. I'm happy to talk with you about it anytime.
    Anonymous 1 Replies
    • September 22, 2016
    • 03:23 PM
    • 0
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