Discussions By Condition: Nerve conditions

Symptomatic but "normal" tests

Posted In: Nerve conditions 0 Replies
  • Posted By: teetsle
  • March 24, 2013
  • 07:57 AM

Any insight will be appreciated:
In Feb 2011 I was admitted to Baylor with pneumonia. The swab test in the ER was negative for flu. In less than 48hrs I was sedated, intubated and blood tests tested positive for H1N1. I had developed ARDS which is Acute Respiratory Distresss Syndrome. This is a very dangerous and more often than not fatal lung infection. My family was told I had less than 20% chance of survival. I had come very close to dying twice.
Two weeks later I came out of the coma and was extubated, I had no memory of what had happened. During my stay in the hospital I developed excruciating pain in my feet and ankles and was told it was neuropathy. The doctors could not give me a reason as to why I was having pain. They gave me dilauded which helped.
I was released after a month in the hospital for my long recovery. After all the corticosteroids wore off I had extreme pain in my hands and wrists.
Because I have no insurance I have to use the county medical system for treatment. It is now 2 yrs later and multiple tests have been done and all they tell me is that the nerve test was "normal", the blood work was "normal", I don't have Rheumatoid Arthritis or Lupus, and the MRI of my head, neck and spine was normal. Understand that during these past two years I have had to endure this pain with only Tylenol because the system does not allow my doctor to prescribe pain meds!
I have finally secured an appointment with a neurologist in June but I don't have much faith in my receiving any help.
My hands and feet aren't the only residual problems from my illness. I have memory loss, depression, problems with concentration, PTSD.
I have lost everything...my home, car, job and my independence. I finally have my own apartment and am able to survive on disability. I feel very lucky for that since I know I am better off than alot of others.
Whatever y'all can help with I appreciate!

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