I have been searching high and low for others who have been diagnosed with SMS. I would like to know more about this disease in real life terms, as opposed to what I read on the Net.
My symptoms range from ringing in the ears, sharp shooting/stabbing pains, electric painful spasms, vision disturbances, pain & Stiff ness, gait/balance problems, muscle weakness, Abnormal posture (lordosis) Hyper startle reflex, I started out with a complaint of chronic back pain from which I only got partial releif of the aching if I were to lay down, I saw a chiropractor for extended periods of time with no real relief and so much more to tell.
I was thought to have possible pinched nerve, MS,lupus,Lyme Disease, ALS and others but after several MRI's, EMG's, and the other neuro test....I was found to have elevated GAD antibodies....and given the wierd diagnosis of Stiff mans syndrome, aka Stiff persons syndrome, aka Moersch Woltman syndrome.
This is thought to be an autoimmune disorder. SMS is a chronic, progressive (variable) disorder of the central nervous system having no known cause, or cure I am currently being treated with Baclofen and Vicoden which gives me 80% relief from symptoms....but does not improve my balance or gait.
IS there any one else out there who can share anything with me?