I had a fall in June 2006 and started using a cane. I was diagnosed with arthritis the prior year, so they thought my slow healing from the fall was just arthritis.
But starting in August, I started to feel weakness in my right arm which I initially thought was carpal tunnel. Then the weakness started in the upper right arm and then the left arm, particularly in on the outside/peripheral part of my arms. Then my legs to the point I can barely walk and have gone from a cane to a walker and now they are talking scooter.
I have had every blood/urine test you can think of - they have tested for everything. At first they thought is was metastatic cancer which was spreading. I was hospitalized to take more tests, a CAT scan, a lumbar puncture and MRIs. They found a cyst in my pelvis area, a goiter in my throat and some unexplained happening on my spinal cord. I just had another MRI (brain) today. My neurologist just called to say that my muscle biopsy was negative, so now we're back to the original pre-diagnosis of some kind of nerve damage/disease near my spinal cord which has no treatment or cure. Before this, it was muscle damage/disease or ALS. I am having another EMG soon because my doctor says this is progressive and my symptoms will change from time to time.
I am very scared, frustrated and feeling depressed. I am a single parent with 2 kids and a mother with cancer. There is no way I can live with this crippling disease and take care of my family let alone take care of myself. Does anyone have any suggestions or theories.
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